Reprinted with the kind permission of ME Action.
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August 7, 2015. The Open Medicine Foundation’s Severely Ill Patient Big Data study has gotten a HUGE boost with the help of an anonymous donor.
This $500,000 donation will allow the OMF to go forward with their severely ill patient study and expand the sample size, allowing for a more robust study.
Why the severely ill patient study is so important?
Very little research has been done in the bedbound, severely ill patients because they are hard to reach. By looking at the simple body fluids of the severely ill, we may discover distinctive biomarkers that have not been found in previous ME/CFS studies. By then testing these biomarkers in the less severely ill, we may discover an inexpensive and clinically useful diagnostic test.
“Hopefully, the more severely ill will have a stronger signal of what’s going wrong,” said Dr. Davis, OMF Scientific Advisory Board Director. “As a result, we won’t need as many patients.”
A big thank you to this anonymous donor and to all the angels who have supported ME research.
You can read more about the Severely Ill Patient Big Data study HERE.
You can donate HERE.