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Shake That *^#&! ing Stigma – The “Shake the CFS Stigma Challenge” Begins

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Reprinted with the kind permission of Cort Johnson and Health Rising.

Wouldn’t you just love to “Shake the Stigma”? You know the stigma that says chronic fatigue syndrome is just about fatigue (and mild fatigue at that). That everyone has it from time to time. That it’s a cover up for malingerers. That it’s not “real.”

Wouldn’t you just love for the National Institutes of Health to “Shake the CFS Stigma” and starting treating ME/CFS like a real disorder that deserves real funding?

The Simmaron Research Foundation thinks it’s time to “Shake the CFS Stigma” off – literally – and to challenge your friends and government officials to do the same. To leave that stigma lying in the dust from, (and if you feel like it, maybe stomp on it a couple of times..(my suggestion :)))

ME/CFS is real, it’s serious, and the ME/CFS community – all 17 million of them around the world – are not going away; it’s time to shake that CFS stigma for good!

The Simmaron Research Foundation has begun the #ShakeTheCFSstigma challenge.

Here’s how it works…

Shake or Donate – Shake the Stigma of Chronic Fatigue Syndrome

Do the 4 easy steps below OR donate $10 (or what you can) to help Simmaron Research shake the CFS Stigma:

1.  Video yourself doing a “shake” – dance, shake your hands or head, shake a drink, shake a leg …(If I can get a video going I’m going to shake something with the word stigma on it – and then I’m going to break it – and then I may stomp on it..))

2.  Post the video on any of these sites, using the hashtag #ShakeTheCFSstigma (simply embed the hashtags into the title)

  • Facebook
  • Twitter
  • Instagram
  • YouTube

3.  Challenge 3 people to #ShakeTheCFSstigma including an official in the U.S. government with power to fund research!

4.  Cut and paste the text and instructions above into an email addressed to those you challenge.

(A word for government officials: please participate in your off-time and on personal accounts if necessary)

Here are some ideas:

OR donate $10 (or what you can) to help Simmaron Research shake the CFS Stigma

– See video’s at Simmaron’s Facebook site


About the Author: Cort Johnson has had ME/CFS for over 30 years. The founder of Phoenix Rising and Health Rising, Cort has contributed hundreds of blogs on chronic fatigue syndrome, fibromyalgia and their allied disorders over the past 10 years. Find more of Cort’s and other bloggers’ work at Health Rising.

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One thought on “Shake That *^#&! ing Stigma – The “Shake the CFS Stigma Challenge” Begins”

  1. Tuxiecat says:

    I am not sure who is actually behind this “campaign,” but it is likely to do much more harm than good. Right now, our lives are at stake with actions being taken by the government to put us so far in the dark we may never climb out. We need an advocacy campaign that actually makes sense and can fight for an end to “CFS” altogether. There will always be stigma around a name that is meaningless. Those patients with Myalgic Encephalomyelitis must be treated as patients with ME. And the illness must be funded. Those who do not meet the criteria for M.E. must ALSO be funded and treated, and they must be given a name that accurately reflects their disease or diseases. “Shaking it out” on social media makes us look like…um…”less than informed” people.

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