OBJECTIVE: The purpose of this study was to describe parental
pain history and the family environment as it relates to the
functional status of children with Juvenile Primary
Fibromyalgia Syndrome (JPFS).
DESIGN AND OUTCOME MEASURES:
Twenty-nine parents of children with JPFS completed a pain
history questionnaire, Von Korff Chronic Pain Grading system,
and the Family Environment Scale (FES). Twenty-one adolescents
with JPFS completed the FES, the Visual Analogue Scale for
Pain, the modified Fibromyalgia Impact Questionnaire for
Children, the Arthritis Impact Measurement Scales, and the
Symptom Checklist-90-Revised. Correlational analyses were
RESULTS: Parents of children with JPFS reported
multiple chronic pain conditions, including but not limited to
fibromyalgia. Parental pain history and the family environment
correlated with the health status of adolescents with JPFS.
Children with JPFS perceived the family environment as
significantly more cohesive than did their parents. Greater
incongruence between parent and child responses on the FES
positively correlated with greater impairment.
These results suggest that family environment and parental
pain history ay be related to how children cope with JPFS.
Behavioral interventions targeting the family may improve the
long-term functional status of children with JPFS.