Study Seeks Input from Chronic Fatigue Syndrome Patients

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The Research and Training Center on Full Participation in Independent Living (RTCFPIL), was awarded a grant by the National Institute on Disability and Rehabilitation Research (NIDRR) to determine how well people with disabilities are able to live independently and participate in their communities.

The survey tool they will be using includes input from a workgroup of nationwide disability advocates and addresses a variety of issues, including employment, transportation, housing, education, health care and recreation. Using the Consumer Concerns Report Method, they are conducting the survey to learn directly from persons with disabilities about participation in their communities. This information will be used to craft a research agenda that is based on feedback from the disability community. Their goal is to solicit as many responses to their survey from people with disabilities and chronic health conditions across the nation as possible.

You can access the survey by visiting www.rtcfpil.org/survey.htm For additional information, or to obtain a paper copy of the survey, call 800-255-3555 and ask about the R-One survey. The results of this survey will be posted on their Web site, www.rtcfpil.org/surveyresults.htm in the fall of 2002.

Source: The CFIDS Association of America

Advocacy, Information, Research and Encouragement for the CFIDS Community

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