The Fibromyalgia diagnosis – hardly helpful for the patients? – Source: Scandinavian Journal of Primary Health Care, Dec 2007

[Note: the full text of this Scandinavian focus group study is available free at http://www.informaworld.com/smpp/section?content=a787472039&fulltext=713240928]

Objective: To explore experiences and consequences of the process of being diagnosed with fibromyalgia.

Design: Qualitative focus-group study.

Setting: Two local self-help groups.

Subjects: Eleven women diagnosed with Fibromyalgia.

Main outcome measures: Descriptions of experiences and consequences of the process of being diagnosed with Fibromyalgia.

Results: Many participants had been suffering for years, and initial response of relief was common. For some, the diagnosis legitimized the symptoms as a disease, for others it felt better to suffer from Fibromyalgia rather than more serious conditions.

Nevertheless sadness and despair emerged when they discovered limitations in treatment options, respect, and understanding. Some patients keep the diagnosis to themselves since people seem to pay no attention to the name, or blatantly regard them as too cheerful or healthy looking. The initial blessing of the Fibromyalgia diagnosis seems to be limited in the long run. The process of adapting to this diagnosis can be lonely and strenuous.

Conclusion: A diagnosis may be significant when it provides the road to relief or legitimizes the patient’s problems. The social and medical meaning of the Fibromyalgia diagnosis appears to be more complex. Our findings propose that the diagnosis was hardly helpful for these patients.

Source: Scandinavian Journal of Primary Health Care. 2007 Dec;25(4):250- 5. PMID: 18041660, by Undeland M, Malterud K. Department of Neurology, Buskerud Hospital Trust, Norway.

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One thought on “The Fibromyalgia diagnosis – hardly helpful for the patients? – Source: Scandinavian Journal of Primary Health Care, Dec 2007”

  1. JANISM says:

    i FOUND OUT i HAD fIBROMYALGIA AFTER 15 YEARS OF UNDIAGNOSED PAIN. tHE AWARENESS OF THE DISEASE HELPED ME GET A COCKTAIL OF DRUGS THAT TRULY HELPED ME PHYSICALLY. eMOTIONALLY i EXPECTED i WOULD BE HELPED BUT THE OVERALL REACTION TO THE DIAGNOSIS ONLY HELPED WITH MY CLOSEST RELATIVES AND FRIENDS. tO THE GENERAL PUBLIC, MOST IMPORTANTLY MY COWORKERS IT MEANT NOTHING BECAUSE THE DAY BEFORE AND THE DAY AFTER A FLARE UP i LOOKED FINE. i THINK THE CURRENT ADVERTISEMENTS FOR lYRICA HAVE DONE MORE TO LEGITAMIZE THE DISEASE THAN ANYTHING ELSE. iT IS STILL A STRUGGLE BECAUSE i LOOK TOO DAMN GOOD.
    JANIS MAXYMOF

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