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TOUCHED BY LYME: Yes, the IDSA noticed us in San Diego

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Reprinted from Lymedisease.org with the kind permission of Dorothy Kupcha Leland

TOUCHED BY LYME: Yes, the IDSA noticed us in San Diego

A valiant group of Lyme activists braved a record-breaking heat wave in San Diego Oct. 9-10 to protest outside the Infectious Diseases Society of America’s annual conference. Our long-term goal remains the revision of the IDSA’s odious guidelines, which make it so difficult for people with Lyme disease to get the medical treatment they need and deserve.

Our short-term goal was to catch the attention of individual members of the IDSA and inform them about how destructive their organization’s policies are to Lyme patients. (It always amazes me to realize that many individual members of the IDSA know nothing about the controversy concerning Lyme and the IDSA’s part in it.)

The protest in San Diego was jointly sponsored by LymeDisease.org, the Mayday Project, and the San Diego Lyme Disease Support Group. Here’s some of what happened:

Thanks to a generous donor, we once again hired a billboard truck to circle the vicinity of the convention center daily, 9-5, throughout the conference. (See above.) We incorporated that same message into a Twitter campaign. According to Symplur Hashtags, a company that measures such things, @Lymenews (that’s us) was one of the “top influencers” of those tweeting with IDSA’s hashtag “IDWeek2015.” (Click here for more info about that.)

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TOUCHED BY LYME is written by Dorothy Kupcha Leland, LymeDisease.org’s VP for Education and Outreach. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide, to be published this month. Contact her at dleland@lymedisease.org. On Twitter, she’s @dorothyleland.

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