The CFSAC Video Project has already posted the majority of the May 10 CFSAC meeting on YouTube (in 24 segments) at www.youtube.com/view_play_list?p=131A8EEA7ECD72CD. For this wonderful, fast reporting, we thank and applaud spokesperson Khaly Castle and members of the Barborka Family, CFSKnowledgeCenter, CFSUntied, Diagnose Support, Teejkay, and P.A.N.D.O.R.A. Inc. The Project also plans to offer transcripts, copies of written testimonies, and any available pictures.
Meanwhile, the NIH.gov website will as usual post its own videos of the event within a few days – http://videocast.nih.gov/. And the WPI has posted the 3-minute testimony of Founder Annette Whittemore.
Background on the May 10 CFSAC Meeting in Washington, DC
The CFS Advisory Committee provides advice and recommendations to the Secretary of the US Dept. of Health & Human Services on issues related to ME/CFS. This is done through public meetings held in Washington, DC roughly twice a year, with Dr. Wanda K Jones, PhD, Principal Deputy Asst. Secretary for Health, currently presiding. At these meetings, CFSAC members present reports, issues are discussed, and patients & advocates make brief public statements by pre-arrangement.
For info on the Committee members and “Ex Officio” members representing the CDC, FDA, HRSA, NIH, and SSA, go to the CFSAC website – http://www.hhs.gov/advcomcfs/roster/index.html
You Can Read Much of the Written Testimony Online
The scripts of many of the public testimonials are online at the CFSAC website – www.hhs.gov/advcomcfs/meetings/presentations/05102010.html
The Meeting Agenda/Presentation Times
A broad agenda of the meeting with times of recommendations, comments & discussion is posted at www.hhs.gov/advcomcfs/meetings/agendas/cfsac20100510_agenda.html
Streamed Live, Archived for Public Viewing
The meetings are streamed live online via the NIH VideoCasting Center at http://videocast.nih.gov/. The government tracks number of viewers to determine whether “interest” justifies the expense of videocasting. Videos of the CFSAC webcasts are offered online on the NIH.gov website within several days after the event – http://videocast.nih.gov/ (look in “archives”).
Software Needed for Streaming Video Viewing
To find out if you have the needed software, or download what you need free, go to http://videocast.nih.gov/faq/#software