At the CFS Advisory Committee (CFSAC) report to the NIH on November 28 and 29, ME/CFS research reporter Cort Johnson, founder of the Phoenix Rising website, commented on the long term decline of the NIH’s CFS Research Program, characterizing it as “The Do Nothing Program.”
“…federal officials came out in impressive force during the recent Grantsmanship Workshop for ME/CFS – and ME/CFS advocates applauded their knowledge and concern,” Cort stated. “So we have a conundrum. How has it happened that these knowledgeable and concerned people have presided over the worst decline in ME/CFS research funding in its history? Why are one or two or three studies funded a year in a disease that affects millions acceptable to the NIH?”
To read the full text of his comments and suggestions, go to the Phoenix Rising website at http://phoenix-cfs.org/AdCFSACTestDec07s.htm.
Note: The CFSAC is a group of experts charged with advising the Secretary of the U.S. Department of Health & Human Services on ME/CFS-related issues. Each of the Committee’s occasional presentations to HHS also includes brief comments from the public, such as this one. The CFIDS Association of America has published a summary of the meeting’s proceedings.