VIDEO: LymePolicyWonk: The Problem of Misdiagnosis in Lyme disease – Lorraine Johnson’s presentation to SIDM

On November 3, Lorraine Johnson, CEO of the non-profit organization, LymeDisease.org, gave a presentation to the Society to Improve Diagnosis in Medicine (SIDM), a non-profit organization that seeks to bring together researchers and patients to reduce diagnostic delays and avoid missed diagnosis. LymeDisease.org is a patient partner in SIDM and values the opportunity to work with them to amplify the patient concerns about how misdiagnosis and delays in diagnosis harm patients. Lorraine’s speech—which draws on insights from the MyLymeData patient registry—highlights some of the factors that contribute to delayed diagnosis in Lyme disease.