The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and chronic fatigue syndrome

Until now there has not been a comprehensive questionnaire to assess post-exertional malaise
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Abstract

Post-exertional malaise, or a variation of this term, is a key symptom of myalgic encephalomyelitis and chronic fatigue syndrome, as this symptom is mentioned in almost all myalgic encephalomyelitis and chronic fatigue syndrome case definitions. Until now there has not been a comprehensive questionnaire to assess post-exertional malaise.

To rectify this situation, in this article we describe the development of a new questionnaire, called the DePaul Post-Exertional Malaise Questionnaire, which was based on input from hundreds of patients. Preliminary validation was provided by the findings of significant and predictable relationships between different domains of this post-exertional malaise questionnaire and physical functioning.

Source: Jason LA, Holtzman CS, Sunnquist M, Cotler J. The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and chronic fatigue syndrome. J Health Psychol. 2018 Oct 24:1359105318805819. doi: 10.1177/1359105318805819. [Epub ahead of print]

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One thought on “The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and chronic fatigue syndrome”

  1. dfwmom says:

    A questionnaire for the diagnosis of ME is absolutely insufficient and inadequate. What patients need is a real, true biochemical test that will demonstrate on paper, free from any doctor’s, or even any patient’s, subjective impressions of what is, and what is not, ME. As it is already know that cytokine levels are abnormal in ME patients, that is a great place to start Psychologists need to step aside from the entire topic of M.E. They have done enough damage, and they need to stop now. Really. Psychologists need to step away and leave M.E. to real doctors, because they have harmed and possibly even killed patients with their CBT and GET. ME patients are very, extremely, extraordinarily ILL, and to be subjected to games like questionnaires and fake treatments like CBT and GET can result in patients being mis-diagnosed, and mis-treated, and denied effective medical treatment to the point that they can literally DIE. Psychologists, leave ME to real doctors!

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