When the mysterious pain and debilitating fatigue plaguing a loved one is diagnosed as "Fibromyalgia," the first reaction is usually relief at finally having a name for the pain followed by confusion as everyone scrambles to get information. What does a diagnosis of Fibromyalgia mean? Is there hope that things will get better?
Filmmakers Daneen Akers and Stephen Eyer asked these questions when Daneen's mother was diagnosed with Fibromyalgia several years ago. After watching their family search for answers, they decided to make a film about their own journey for understanding and hope. They interviewed doctors, experts, and, most importantly, Daneen's mom and other Fibromyalgia patients who share their own stories of learning to survive and even thrive with this illness.
The result of over two years of interviews and research, Living With Fibromyalgia is the film they wish their family could have watched together when they first heard the word "Fibromyalgia."
Platinum Remi Award at the 41st Annual Worldfest Houston International Film Festival (first place in the documentary category)
2008 Communicator Award – Award of Distinction in the Health & Wellness category
What People Are Saying About Living With Fibromyalgia
"I saw the DVD yesterday. I can't tell you how much it affected me in a positive manner. While watching it, I couldn't help but think 'Hey, they are just like me!' I've ordered the DVD to share with my family and friends so they can hopefully see that I for the most part, I do pretty well, but I will have bad days and that is okay. I think viewing Living With Fibromyalgia may have changed my life! Thank you.
- Kelly Martin, Fibromyalgia patient
"I do not have the correct words for it, but I feel more alive and full of hope and more 'normal' - not crazy - since seeing your documentary. Thank you. It gave me the confirmation I needed to continue to put my health first and to know that I'm not lazy and never have been. Thank you again!"
- Becky Anderson, Fibromyalgia patient
"I just wanted to let you know that we really enjoyed watching Living With Fibromyalgia last night. You succeeded in producing a beautiful, moving film. It actually made me cry, because it's a powerful thing to hear other people articulate a range of emotions and experiences to which I could relate. I'm sure you will hear this over and over from the Fibromyalgia community, but I felt like each of the personal stories shared in that film could have been mine in a sense."
- Sharon Fugimoto-Johnson, Fibromyalgia patient
"I cannot thank you enough for producing this DVD. It made me feel VALIDATED just to watch and listen, plus it gave me some ideas to add to the ones I am working on to make my life more live-able, more enjoyable. Thank you for adding so much to my life. I have the DVD still in one of my two players as I plan on watching it many more times!!!"
- Lyne Shop, Fibromyalgia patient
"I'm so thankful I watched this film -- it was eye-opening. This film inspired me to get educated and get involved with my mom's recovery."
Candice Gilliam, daughter of a Fibromyalgia patient
"This film only tells the story of seven people, and yet you've told my story. You've told the story of millions."
Sharon Squires, RN and Fibromyalgia patient
- Our family's story
- The search for answers
- Physical factors
- A doctor's perspective
- Tender point exam
- Introduction of patients
- Finding a good doctor
- Cedars-Sinai's integrated approach
- Managing pain
- Advice for family members
- Advice for patients
- Hope for the future
- End credits
| ||Filmmakers and husband and wife producing team, Stephen Eyer and Daneen Akers. |
| ||Liana Gefter, a medical student at Stanford, hopes to someday be a doctor who doesn't demoralize or belittle pain patients. |
| ||Randy Wold deals with having an illness that many think of as a "woman's disease". |