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Invalidation, lack of personal support, loneliness more marked with fibromyalgia than other rheumatic diseases

  [ 16 votes ]   [ 1 Comment ] • February 17, 2012

Loneliness in patients with rheumatic diseases: The significance of invalidation and lack of social support
– Source: Journal of Psychology, Jan-April 2012

By MB Kool, R Geenen

Rheumatic diseases affect about 20% of the population, leading to common symptoms such as joint problems, pain, fatigue, and stiffness. Loneliness is prevalent in individuals with rheumatic diseases. This could be due to not receiving social support and being stigmatized and invalidated, which might be most common in fibromyalgia, a rheumatic disease that lacks medical evidence. ["Invalidated" means people do not believe in one's symptoms.]

The aim of this study was to compare loneliness in distinct rheumatic diseases and to examine the association of loneliness with social support and invalidation.

Participants were 927 patients with ankylosing spondylitis (n = 152), fibromyalgia (n = 341), osteoarthritis (n = 150), rheumatoid arthritis (n = 171), or systemic diseases (n = 113).

They completed online questionnaires including an 11-point Likert scale assessing loneliness, the Illness Invalidation Inventory (3*1; Kool et al., 2010), and the Social Support Survey (SSS; De Boer, Wijker, Speelman, & De Haes, 1996; Sherbourne & Stewart, 1991).

Patients with fibromyalgia experienced significantly more loneliness than patients with ankylosing spondylitis and patients with rheumatoid arthritis.

Besides being younger, having lower education, and not working, in multiple regression analyses both lack of social support and invalidation were independently correlated with loneliness.

This suggests that to decrease loneliness, therapeutic attention should be given to both increasing social support as well as decreasing invalidation (stigma) in patients with rheumatic diseases, especially in patients with fibromyalgia.

Source: Journal of Psychology, Jan-April 2012; 146(1-2):229-41. PMID: 22303622, by Kool MB, Geenen R. Utrecht University, Department of Clinical and Health Psychology, University Medical Center Utrecht, The Netherlands. [Email:]

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Article Comments Post a Comment

Lack of personal support in rheumatic disease
Posted by: spacee
Feb 18, 2012
It is offensive to me to read that FM patients are younger, have less education and don't work
as opposed to the other ill ppl. I know plenty of older, well educated ppl who are still hanging]
on to their jobs and have FM. I feel like that was a biased opinion against FM patients.
Reply Reply
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