Out with the bad, in with the good
The first thing I did was to begin eliminating things that are horrible for me. I got rid of my non-stick pans, quit aspartame products, cut down my Pepsi habit to less than one a day, quit smoking, and even found toothpaste without flouride. I also stopped buying and eating chemical/processed foods.
Then when I started to see things more clearly, I started supplements from here at Pro Health. Began with the amazing Fibro Multi with Malic Acid and felt a small kick the first day I tried it. (Wonderful stuff) I've moved on to Probiotics, Sublingual B-12, Astragalus, Green Tea, Glucosamine, Coenzyme Q10 and a few others. Also learned about the wonders of a balanced magnesium/calcium/zinc supplement here too, so my muscle pain has almost disappeared.
I'm eating better than I ever have after learning more about nutrition on this board – lots of fresh fruits and veggies. I've moved up on the scale from a 0-10 to about 30-40 on the good days. That's a major improvement for me. – Nancy
Getting into the water
If you can only float, do it. It gets the weight off of our muscles and joints. Work up to a water aerobics class. On your worst day, that is when you need to go the most. That is sooo hard for me but I promise you will see a difference. – Suzette
Dealing with guilt feelings
I have nothing dramatic to share…This is just a small way that I deal with a lot of guilt feelings and bad cases of "poor me." When I am stuck in a flare, or if I'm just stuck in my own head, I tend to get very hard on myself about all I am not able to do.
I have found that if I am able to make a list of all the things I have done to contribute to the functioning and well-being of myself and my family, it really adds up to much more than I would have ever guessed. I give this list to my husband so that he can see that I haven't "abandoned" him to cope with everything on his own, but that my heart and mind are always working, even if my body can't. He really appreciates these “reports” as well.
I list every single thing, whether it's “got dressed” or “reviewed problem with daughter's teacher” or “shopped online for Christmas presents” or “read article on CFS, made notes to ask doctor" or "designed dress in sketchbook to keep creative juices flowing.” This list makes both of us feel I am still part of the team, and I haven't given up. If I were single, I would still do this. It would seem almost even more important to do so, since I wouldn't have anyone recognizing my efforts except for me.
From a physiological standpoint, I think making a list is something that requires the left side of the brain to function, and the more it is stimulated, the better we feel. I read an article about this a while back. If we do things, but don't acknowledge having done them with our left brain, it feels the same as if we hadn't done it at all.
For instance, if I design in my sketchbook, that's a right-brain activity. It is fun and feels good while I'm doing it, but the recognition of it with the left-brain – by mentioning it out loud or writing it down – is what makes the feeling of accomplishment and well-being last…I think writing down "what works for me" is a very good left-brain activity for all of us, and probably makes us realize how very hard we've worked and how far we've come. – Lisette
Aside from medicine and supplements, I reluctantly joined Curves at the urging of my doctor. Wow, I can't believe the difference only 3 weeks later! I can really pace myself and I am more mobile and more able to adapt to the machines every day, I found there were other FM sufferers, as well as arthritis and a variety of other disabilities that people who go there have. One lady shows up with her walker every day. The age range there is mostly in the late thirties to late eighties. They've inspired me! - Anon