The CFIDS Association of America – a leading advocate for U.S. Chronic Fatigue Syndrome patients since 1992 – has scheduled its 15th annual CFS Congressional lobbying day for May 15 in Washington, DC. Individuals interested in meeting with a senator or representative to lobby for positive CFS policy are encouraged to volunteer as soon as possible.
With all the information generated by the CDC’s awareness campaign, and with at least 51 new faces seated in the Senate and House of Representatives following the November 2006 elections, the CFS community’s opportunity to exert an influence on policy has never been greater, the CFIDS Association notes.
A Two-Day Time Commitment
Volunteer advocates – “from California to Maine” – will gather in Washington for a training session on Monday, May 14. Participants, who typically include a mix of patients and friends or family members advocating for patients, will receive packets of information and instructions on specific messages to communicate. And the next day, on Tuesday, May 15, the newly-minted CFS lobbyists will travel in groups to meet with members of Congress and Congressional staffers.
“We've never had more news to share with lawmakers and their staff members,” the event’s organizers say. “And our Lobby Day advocates have the chance to show them how this real, brutal condition affects the lives of their constituents and warrants greater federal investments in research and education. The payoff from this CDC-funded awareness campaign will be great evidence to share with even the most thrifty members of Congress.”
If You’re Interested in Being an Advocate
The CFIDS Association encourages you to sign up by e-mailing them at firstname.lastname@example.org – including your name and mailing address. Once you’re in the loop, you will receive more information and early notice of campaign details as they develop.
To read more about the CFIDS Association’s advocacy work and last year’s Lobby Day, go to http://www.cfids.org/advocacy/lobby-day.asp.