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Founder's Corner: Name Change Advisory Committee Nearly Complete

  [ 319 votes ]   [ 1 Comment ]
www.ProHealth.com • December 13, 2006


Drs. Cheney, Komaroff Join CFS Name Change Board

Doctors Paul Cheney and Anthony Komaroff have joined the Chronic Fatigue Syndrome Name Change Advisory Board - the group of leading CFS researchers and specialists charged with recommending an appropriate new name for "Chronic Fatigue Syndrome". The objective of this Campaign for a Fair Name is a timely transition to a name that does not stigmatize patients by labeling their disease as a "fatigue" syndrome.

Drs. Cheney and Komaroff bring to eight the number of noted CFS experts on the Advisory Board. They join Drs. Lucinda Bateman, David Bell, Charles Lapp, Nancy Klimas, Leonard Jason, and Daniel Peterson. These eight are among the most respected names in the CFS community, both in the U.S. and worldwide. Between them they represent more than 150 years of CFS research and clinical care.

The charter of the Name Change Advisory Board is to discuss and debate alternative names for "Chronic Fatigue Syndrome" and to deliver a consensus opinion on an appropriate name. As a next step, a meeting of this U.S. based group is tentatively scheduled for mid-January at the annual conference of the International Association for Chronic Fatigue Syndrome - the IACFS.

Dr. Paul Cheney, widely considered to be the grandmaster of CFS theory and clinical treatment, has focused his career on CFS research since his involvement in the Incline Village epidemic in the mid-1980s. A theorist by nature, with a PhD in nuclear physics from Duke University, Dr. Cheney is known as a proponent of the "cardio" theory that describes CFS symptoms as the body's compensatory response to heart damage.

Dr. Anthony Komaroff, of Harvard Medical School, is the most quoted CFS expert in the world, respected for his passionate determination and scientific objectivity in investigating the cause(s) of CFS. As Dr. Komaroff stated recently, "literature from over 4,000 published research studies has revealed a number of physical or biological abnormalities in CFS. The illness is not simply a set of symptoms people imagine they have, and it is not a psychological illness."

All the members of this esteemed board are committed to changing the name for this disease to one that will not trivialize it.

Wishing you health and hope,

Rich Carson
ProHealth Founder and CFS Patient




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A name that befits our affliction!
Posted by: bluewing
Dec 13, 2006
We have heard too many friends and family reply to "Chronic Fatigue Syndrome" with comments such as "oh, I get really tired, too." Right then! you know you've lost the battle of trying to explain the horrors of living with this disease. We need those doctors to help develop the name that will cease demeaning all people who suffer with THIS, and if it's not asking too much, it's side-kick, FMS. "Oh, I have this pain in my....." So, we suffer in silence. Mary
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