…on people who develop CFIDS as a result of inoculation. I had one flu shot in my life, became terribly ill within 48 hours with what felt like flu. And it was the flu that never went away, eventually diagnosed as CFIDS. From my years on online support groups, I know there are many more people who have reported the same occurrence.
There is no doubt that inoculations can set off the process. These shots are designed to stimulate the immune system in a way that can prevent a future infection with something like a strain of the flu virus. Therefore it is just like getting that particular flu virus strain and thus can set off the process. The vaccine that I have seen causing the greatest problem is the Hepatitis B. Maybe that is a coincidence, but…
Neither genetic susceptibility nor increased psychological stress answer this question (about increased incidence of ME/CFS) to my satisfaction. That leads me to believe either there's a new pathogen about - or an old one acting in atypical fashion, or that the toxic overload in the environment has reached a critical mass, damaging either the brain, the immune system or both. I can't think of any other explanations. I'd love to be corrected if I'm wrong.
Because it has been ignored for so long, we really do not know if there is an increased incidence of this illness. If there is, I like the idea of a two-hit process. It would go like this.
Hit #1 would be silent, either with an infectious agent, a new agent, or a toxin. By itself it does not do anything, but sets the stage for hit #2, which would be the standard infection.
Because of the silent first hit, the second hit causes ME/CFS. It would make a good science fiction/horror movie.
I have several questions that have plagued me for years; I’m hoping that you can provide the answer. I have always been amazed at the similarities between CFS and BSE [bovine spongiform encephalopathy or ‘mad cow disease’] and Scrapie [a similar disease affecting the central nervous system of sheep]. I am curious to know if you have ever found a person with CFS among the vegan/vegetarian population?
I have never systematically looked for lifetime vegans with ME/CFS. Your question is really about the possibility that the illness may be a prion disease. To my knowledge no one has looked at this in any detail.
I would be interested to hear from any reader who has any information about this.
The known prion diseases are neurologic illnesses that are fatal. It may be that there are variations not yet understood that are not fatal.
Have you ever found CFS to exist in people or their children who are monogamous and have had only one sexual partner?
The question is whether ME/CFS can be transmitted sexually. The question cannot be answered because we do not know the specific agent that has initiated ME/CFS in a specific individual.
It is likely that some known sexually transmitted illnesses can initiate ME/CFS. (Remember, the illness is more often a post-infectious phenomenon rather than due to a specific infection.)
However ME/CFS clearly may occur in persons who have never had sexual exposure. One ‘outbreak’ many years ago occurred in a convent.
Any medical advice that is presented in the Lyndonville News is generic and for general informational purposes only. ME/CFS/FM is an extremely complex illness and specific advice may not be appropriate for an individual with this illness. Therefore, should you be interested or wish to pursue any of the ideas presented here, please discuss them with your personal physician.
* Reproduced with permission of the author from Dr. Bell's newsletter, the Lyndonville News, Volume 3, Numbers 1 & 2, September and November 2006 ©Copyright 2006. David S. Bell. All Rights Reserved. Lyndonville News provides “Information and Support for the ME/CFS/FM Community.” To subscribe, go to http://davidsbell.com/DSBJoin.htm E-mail subscription is free, while the hard copy sent by mail involves a fee.
Dr. David S. Bell is one of the world’s leading experts on Chronic Fatigue Syndrome, and is a pioneer in the diagnosis and treatment of ME/CFS. He is widely published, has taught at Harvard Medical School, and currently practices privately in Lyndonville, NY. There he sees a limited number of ME/CFS and Fibromyalgia patients and maintains a special interest in children with the illness.
Note: This information has not been evaluated by the FDA. It is not meant to diagnose, treat, cure, or prevent any illness, disease, or condition. It is very important that you never make a change in your health support program without reviewing and discussing it collaboratively with your professional healthcare team.