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COMING SOON: The Fibromyalgia Wellness Project - an NIH-sponsored online self-help project for people with FM

  [ 25 votes ]   [ 5 Comments ]
By William Collinge, PhD, MPH • www.ProHealth.com • June 2, 2009


Inviting FM patients nationwide for a free "journey of personal discovery to learn how you can best reduce symptoms and improve well-being in your own situation.”

A new research project will soon be available for participants with fibromyalgia across the U.S. “The Fibromyalgia Wellness Project” is an online self-help program - years in the making - that is part of a research study sponsored by the National Institute for Arthritis, Musculoskeletal and Skin Diseases (NIAMS) and directed by William Collinge, PhD – www.collinge.org.*

Put your name on the project's launch notification list now, so you'll know when the application phase begins - just send a blank e-mail to launch@FMwellness.net

“Since there is no medical cure for fibromyalgia,” Dr. Collinge states, “people need to discover on their own what strategies work best for them to reduce symptoms and promote their well-being. FM is a ‘one size fits one’ condition – no one approach works the same for everyone. It really is a journey of personal discovery to learn how you can best reduce symptoms and improve well-being in your own situation.”

The program uses a brief online daily log that takes about 5-10 minutes to complete.

It enables the user to discover the influences of key health-related behaviors and management strategies on their symptom levels. The program uses proprietary analytical methods to give each user completely individualized feedback about what works best for her or him.

This study is part of Phase II of the FM Wellness Project. Phase I, completed in 2007, found that use of the program was tied to significant improvements in physical functioning, mood, sense of control over health, and productivity.

Phase II will be available for use by 2,200 people with FM through 2010.

• An alpha study is slated to begin enrollment in October 2009. It will accommodate 200 users.

• The beta study will then launch some time in 2010, and will be a nine-month study with space for 2,000 participants.

For information and to sign up starting October 3, go to the Fibromyalgia Wellness Project website (www.fmwellness.org).
___
* William Collinge is well-known in the Fibromyalgia and ME/CFS communities for his innovative self-empowerment counseling, programs, books and guides to help those coping with chronic illness and pain. Starting with healing techniques he developed to support ME/CFS/FM patients referred by Dr. Daniel Peterson in the 1980s, William has worked steadily for more than 20 years to extend real help to the world’s many underserved Fibromyalgia patients. To learn more about his work, browse his website www.collinge.org, and check out a Q&A he hosted last year in the ProHealth Chat Room.




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fm study
Posted by: dorotvm
May 20, 2009
click on the web and get not avaiable. I want to be part of both studys. Dorothy
Reply Reply

Project site
Posted by: meedmo42
May 20, 2009
It is coming up for me, so perhaps it was in transition when last visited. Looks interesting. I am not as severely afflicted if I take meds regularly, but would like to learn ways to deal with this disease in the months when the weather isn't warm and pleasant.
Reply Reply

Fibromyalgia Wellness Project
Posted by: abbeyrode
May 20, 2009
I am interested in participating. Where is the sign up link? I have many blood relatives all with fibro Dobby
Reply Reply

fibromylgia
Posted by: MarleneAllen65
May 21, 2009
Meedmo: What kind of meds do you take?? I take Ultram and neurontin. When I can't stand the pain, I take Hydrocod and sometimes that doesn't even work.
Reply Reply

Already ia a study with great results
Posted by: debraphp
Jun 11, 2009
Have have participated in a FM study for over 2 years. The first part I know I had the placebo, because for the second part I got the 'real drug' milnapricin (used as an antidepressant in Europe for over 20 years) and what a difference. For the first time in many years, I don't have the severe pain and migraines. I still have arthitis issues, but the fibro pain is almost all gone. It is now approved in the U.S. under a different name, I'll have to look it up in my paperwork at home. So for this study I would not be a good participant - but I wanted to share.
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