So many of our readers have expressed their frustration in trying to explain the extreme fatigue they feel to their friends and family in a way they can understand.
One favorite explanation that has been shared for years on the ProHealth message boards and many others is “The Spoon Theory.” Though it is usually posted without attribution, it was written in 2003 by Lupus patient Christine Miserandino.
“My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal girls our age, we spent a lot of time in the diner while in college, and most of the time we spent talking about boys, music or trivial things, that seemed very important at the time. We never got serious about anything in particular and spent most of our time laughing.
"As I went to take some of my medicine with a snack as I usually did, she watched me with an awkward kind of stare, instead of continuing the conversation. She then asked me out of the blue what it felt like to have Lupus and be sick. I was shocked not only because she asked the random question, but also because I assumed she knew all there was to know about Lupus. She came to doctors with me, she saw me walk with a cane, and throw up in the bathroom. She had seen me cry in pain, what else was there to know? ….”
“How do I answer a question I never was able to answer for myself?” Christine asked herself. To read and print out a pdf of the memorable explanation she devised, click here.