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Finally heard, believed, and accepted: Peer support in the narratives of women with fibromyalgia – Source: Patient Education and Counseling, Mar 17, 2011

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By Merja Sallinen, et al. • www.ProHealth.com • March 23, 2011


Objective: The aim of the present study was to analyze how experiences of peer support were described and reflected upon several years after a group rehabilitation intervention. Moreover, we wanted to learn more about what meanings were ascribed to peer support in the narratives of women with a long history of fibromyalgia.

Method: This was a qualitative study in which narrative life story interviews of 20 women with fibromyalgia were collected and analyzed to elicit the impact of peer support in their lives.

Results: We identified four main domains of experienced peer support:

• Permission to talk,

• Need of information,

• Reciprocity, and

• Self-evaluation through comparison.

The meanings ascribed to peer support were mainly positive, although the participants also expressed thoughts about fear of future, hopelessness and mental health issues.

Conclusions:
Long-term fibromyalgia patients saw peer support as an impetus to an ongoing process of reconstruction of identity, illness acceptance and coping with fibromyalgia.

Practice Implications: In addition to updating their knowledge about fibromyalgia and its treatment, long term patients may need arenas where they can share and compare their experiences to those of other patients with a long history of fibromyalgia.

Source: Patient Education and Counseling, Mar 17, 2011. PMID: 21419588, by Sallinen M, Kukkurainen ML, Peltokallio L. Satakunta University of Applied Sciences, Pori, Finland.





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