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FAME 2000 – An “Insider's” View - Chronic Fatigue Syndrome & Fibromyalgia News

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By Tamara Schuit • www.ProHealth.com • May 24, 2000


As a newly hired editor for ImmuneSupport.com I’d been writing about the FAME 2000 International Fibromyalgia Conference for weeks – announcing speakers, chat schedules, and workshop information. I’d thought I knew everything there was to know about it and naively thought it would be “just another interesting conference.”

Was I in for a surprise.

FAME 2000 is the brainchild of Lynne Matallana of the NFAC (National Fibromyalgia Awareness Campaign) – and we came to look upon her as a superwoman of sorts. From organizing the event, to being there personally making sure everything was running smoothly. She was particularly amazing considering she is also a fibromylagia patient.

At the conference I learned that the NFAC’s goal is to:

* Increase the public’s awareness of factual FM information through media and other outreach projects.
* Make the latest research and treatment information available to people with FM.
* Educate and motivate the medical community to provide faster diagnosis, better treatment and more extensive FM research.
* Make individuals aware of salient issues and lobby for legislative reform that will benefit FM patients.

Over the course of the three-day event, Lynne managed to make all of that happen.

It was estimated that 800-1,000 FM patients and 300 doctors attended the event – creating a constant stream of bodies moving smoothly from table to table. In one large conference area were vendors such as American Chronic Pain Association, Arthritis Foundation, Fibromyalgia Network, Immunosciences Lab, Inc., Nelson Health & Longevity Centers, Pfizer, Inc., Scott Davis, Esq., SmithKline Beecham Pharmaceuticals, and ImmuneSupport.com. (just to name a few). Right next door, world-renowned doctors such as Robert Bennett, Lin Chang, Dan Heffez, Stephen Katz, Stuart Silverman, and Jacob Teitelbaum were speaking on a wealth of topics including:

* Learning to Cope Emotionally with Pain
* Recognizing and Treating Depression in FM Patients
* IBS Management
* Chiari Malformation and Cervical Stenosis
* Importance of Sleep Management
* Alternative Treatments

I had the pleasure of meeting Dr. Bradley Nelson of the Nelson Health & Longevity Center and experiencing first-hand the techniques he uses to diagnose FM and CFS. Health Waves demonstrated magnetic therapy, a form of deep muscle massage, that is currently being used to relieve pain in FM and CFS patients. It was a welcome relief after a long day of absorbing lots of good information.

For a complete listing of the FAME events, click here.



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