ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

Scientifically-designed fasting diet lowers risks for major diseases

More evidence for calorie restriction’s longevity effect

Supplementation with vitamin D associated with improved testosterone, erectile function among middle...

A Little Zinc Goes a Long Way

Vitamin D deficiency increases risk of chronic headache

VIDEO: The Best Brain Foods That Help Increase Your Memory!

Get the Most From Your Green Tea

Iron (And More) For Lasting, Natural Energy

Metabolic syndrome increases the need for vitamin E

Supplement combo improves bone density, mood, in postmenopausal women

 
Print Page
Email Article

CFS Conference saw 'the coming together of different disciplines to help demystify the disease.'

  [ 16 votes ]   [ Discuss This Article ]
By Meghan-Morgan Shannon • www.ProHealth.com • October 31, 2000


Editor’s Note: On October 23-24, 2000, the Chronic Fatigue Syndrome State of the Science Conference (CFS-SOS) was held in Rosslyn, Virginia. Donna Dean of the National Institutes of Health, organized the conference. What follows is a personal account of the conference by Meghan-Morgan Shannon, CFS sufferer.

The CFS State of the Science Conference (October 23-24, 2000, Rosslyn, Virginia) was a huge step forward for the scientists and researchers because there were many "non-CFS/ME" doctors there. I get the feeling we as patients are going to have to wait for the perks from this. If this meeting had taken place 10-15 years ago, we would be in a better position.

All of the non-ME/CFS doctors were working under the constraint that this was an SOS meeting on ME/CFS. In that sense it was frustrating as certain things, such as "fatigue is the UNIQUE hallmark of ME/CFS", were repeated. I wanted to stand up and say, 'no, this is not unique to us'.

It was clear to those who put the conference on and the known ME/CFS doctors that there is a large body of information already out there which can be applied to the ME/CFS patient population. I believe Dr. Dean (Donna Dean, Ph.D, of the National Institutes of Health) made this statement in the SOS and in CFSCC several times. Some other doctors said… that this SOS meeting has opened the eyes of all researchers and clinicians in this respect, meaning that research on the brain and endocrine systems, and all others systems that were presented, could be used to help in the understanding and treatment of ME/CFIDS/CFS.

What I saw in the meeting was the coming together of different disciplines to help demystify this disease. I was impressed with many presentations, Dr. Bell was great in his opening speech: "The medical community is responsible for the confusion of this disease and the patients are the heroes". Dr. Bell also stepped in on the discussion of abuse as being the cause of this disease. He found this not to be true.

Dr. Roseanne Armitage, University of Texas, Dallas, spoke about the problems concerning the use of psychotropic drugs and the interruption of sleep. She named trycyclics as major offenders that cause sleep disturbance and then go on to cause problems in the brain and immune system such as waking up more often, movement in sleep, etc. She spoke about other psychotropic drugs and said that all need to be looked at carefully because all interfere with the deep sleep and the length of time you go into the sleep that is needed for the support of the immune system and neurological system.

Dr. Freeman from Beth Israel spoke on Orthostatic Intolerance and NMH. He was great and actually supports Dr. Peter Rowe's research with Pediatric population.

The section on Fatigue, Functional Status and Disability, with Dr. Buchwald and Krupp, Tryon and Passik, was the most boring and frustrating section in the conference. To have this section on Fatigue in the afternoon after so much science had been presented, seemed to be useless in my opinion. I also noticed that most of the researchers and clinicians left the conference. Maybe those who left early saw it as useless and decided to skip out on it. As I said the other researchers and presenter's took the seriousness of this disease to heart and showed that there is much more to this disease then fatigue. They were also much more professional in their presentations.

Editor’s Note: This article is adapted from the report of Meghan-Morgan Shannon and is used with permission



Post a Comment

Featured Products From the ProHealth Store
Ultra EPA  - Fish Oil Ultra ATP+, Double Strength Energy NADH™ 12.5mg

Looking for Vitamins, Herbs and Supplements?
Search the ProHealth Store for Hundreds of Natural Health Products


Article Comments



Be the first to comment on this article!

Post a Comment


 
NAD+ Ignite with Niagen

Featured Products

Optimized Curcumin Longvida® Optimized Curcumin Longvida®
Supports Cognition, Memory & Overall Health
Vitamin D3 Extreme™ Vitamin D3 Extreme™
50,000 IU Vitamin D3 - Prescription Strength
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
FibroSleep™ FibroSleep™
The All-in-One Natural Sleep Aid

Natural Remedies

The New Dual Activation Pain Relief Cream The New Dual Activation Pain Relief Cream
Top 3 Nutrients to Detox the Liver and Soothe Digestion Top 3 Nutrients to Detox the Liver and Soothe Digestion
Looking for Energy? Turn to Plants. Looking for Energy? Turn to Plants.
The Remarkable Benefits of Reishi Medicinal Mushrooms The Remarkable Benefits of Reishi Medicinal Mushrooms
Optimize Your Immune System Naturally: Thymic Protein A Optimize Your Immune System Naturally: Thymic Protein A

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE TO OUR NEWSLETTERS
Get the latest news about Fibromyalgia, M.E/Chronic Fatigue Syndrome, Lyme Disease and Natural Wellness

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2017 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map