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Not Just an

Not Just an "Ill Person" - Ways to expand your identity when you're chronically ill

By Liza Karle Sometimes it’s easy to get engulfed by all of the symptoms and limitations of a chronic illness. It can seem as if we are the illness. But I... [09/11/17]
Is Poor Sleep Pummeling the Immune System in ME/CFS and Fibromyalgia? A Vicious Circle Examined

Is Poor Sleep Pummeling the Immune System in ME/CFS and Fibromyalgia? A Vicious Circle Examined

Reprinted with the kind permission of Cort Johnson and Health Rising   Most people with chronic fatigues syndrome (ME/CFS) and fibromyalgi... [09/04/17]
Staying Connected with Friends While Ill

Staying Connected with Friends While Ill

One of the biggest challenges when living with chronic illness is loneliness and isolation. It can feel impossible to stay connected with old friends when you feel as though you have nothing in common... [09/15/17]
Glial Cell Inhibitors: The Next Sleep Drugs for Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS)?

Glial Cell Inhibitors: The Next Sleep Drugs for Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS)?

Reprinted with the kind permission of Cort Johnson and Health Rising   Sleep disturbances and severe stress as glial activators: key t... [09/20/17]

ME/CFS Breaking News

ME/CFS in School Age Children ME/CFS in School Age Children
From Open Medicine Foundation Back to school time brings many challenges to parents of children with ME/CFS. We know that when ... [09/24/17]
Do you live in NYC? Your doctor can see Unrest for free! Do you live in NYC? Your doctor can see Unrest for free!
From #TimeforUnrest Jennifer Brea's award-winning documentary about ME, Unrest, is opening theatrically in New York this Fr ... [09/23/17]
To Serve or Not to Serve: Ethical and Policy Implications To Serve or Not to Serve: Ethical and Policy Implications
By L. A. Jason Abstract The Institute of Medicine (IOM) is one of the nation's more influential health-related non-profit org ... [09/23/17]
When Things Go Wrong, We Learn! When Things Go Wrong, We Learn!
I have to admit that for the last few weeks that I was in the UK, things went pear shaped with my self-help, and my health declined. Even be ... [09/22/17]
Depression, evening salivary cortisol and inflammation in chronic fatigue syndrome: A Depression, evening salivary cortisol and inflammation in chronic fatigue syndrome: A
By S .F. Milrad et al.. Abstract INTRODUCTION: Chronic Fatigue Syndrome (CFS) is a poorly understood illness that is characterize ... [09/22/17]


More Treatment, Research & News »
Exercise Tests Suggest Autoimmunity Causes the Exertion Problems in Chronic Fatigue Exercise Tests Suggest Autoimmunity Causes the Exertion Problems in Chronic Fatigue
Reprinted with the kind permission of Cort Johnson and Health Rising   Researchers and doctors get interested in ME/CFS in different ... [08/23/17]
Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory
Reprinted with the kind permission of Simmaron Research. By Cort Johnson There’s been a great deal of controversy and ... [08/14/17]
Not Just an Not Just an "Ill Person" - Ways to expand your identity when you're chronically ill
By Liza Karle Sometimes it’s easy to get engulfed by all of the symptoms and limitations of a chronic illness. It can seem as if we are t ... [09/11/17]
When Our Chronically Ill Bodies Say “Rest,” Why Don't We? When Our Chronically Ill Bodies Say “Rest,” Why Don't We?
Reprinted with the kind permission of Toni Bernhard. Scheduling rest periods into your day can help tremendously. Most people who are ... [08/17/17]
Is Poor Sleep Pummeling the Immune System in ME/CFS and Fibromyalgia? A Vicious Circle Is Poor Sleep Pummeling the Immune System in ME/CFS and Fibromyalgia? A Vicious Circle
Reprinted with the kind permission of Cort Johnson and Health Rising   Most people with chronic fatigues syndrome (ME/CFS) and fibrom ... [09/04/17]


More Treatment, Research & News »
Cognitive behaviour therapy and objective assessments in chronic fatigue syndrome Cognitive behaviour therapy and objective assessments in chronic fatigue syndrome
By G. McPhee   Abstract   Most evaluations of cognitive behavioural therapy to treat people with chronic fatigue syndrome/m ... [Stars: 5.00]
Staying Connected with Friends While Ill Staying Connected with Friends While Ill
One of the biggest challenges when living with chronic illness is loneliness and isolation. It can feel impossible to stay connected with ol ... [Stars: 5.00]
Physiological measures in participants with chronic fatigue syndrome, multiple sclerosis Physiological measures in participants with chronic fatigue syndrome, multiple sclerosis
By L. D. Hodges et al. Abstract   PURPOSE: To compare physiological responses of chronic fatigue syndrome (CFS/ME), multi ... [Stars: 5.00]
PACE investigators' response is misleading regarding patient survey results PACE investigators' response is misleading regarding patient survey results
By K. D. Kirke   Abstract   The PACE investigators' citation of a patient survey might mislead readers into thinking that the ... [Stars: 5.00]
Roiling The Waters: Lipkin Speaks Out on Inadequate ME/CFS NIH Research Center Funding Roiling The Waters: Lipkin Speaks Out on Inadequate ME/CFS NIH Research Center Funding
Reprinted with the kind permission of Cort Johnson and Health Rising. By Cort Johnson It’s June 2017 – the Advisory ... [Stars: 5.00]


More Treatment, Research & News »
CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy
Editor's Note:  This article originally appeared more than a decade ago, yet cognitive behavioral therapy (CBT) remains one of the most stud ...
VIDEO:  Dear Healthy People: Are You Feeling Better? VIDEO: Dear Healthy People: Are You Feeling Better?
“Are you feeling better?”   Ken McKim proposes there’s a better question to ask someone who is chronically ill. ...
VIDEO: Tom Camenzind's Story VIDEO: Tom Camenzind's Story
Tom Camenzind is a handsome young man who should be in the joyous throes of youth. A popular and gifted student at Stanford University, Tom ...
VIDEO:  Illness and Isolation VIDEO: Illness and Isolation
In eighth grade, Ali Mitrovich was diagnosed with Lyme Disease. Less than four years after her diagnosis, Ali coordinated “In the Lyme ...
VIDEO: BedFest 2017: Chronic Creatives Choir, What a Wonderful World VIDEO: BedFest 2017: Chronic Creatives Choir, What a Wonderful World
This is  a choir made up of people with chronic illnesses (most have M.E.). These patients are not well enough to join ordinary choirs, ...


More Treatment, Research & News »
Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory
Reprinted with the kind permission of Simmaron Research. By Cort Johnson There’s been a great deal of controversy and ... [Comments: 3]
Not Just an Not Just an "Ill Person" - Ways to expand your identity when you're chronically ill
By Liza Karle Sometimes it’s easy to get engulfed by all of the symptoms and limitations of a chronic illness. It can seem as if we are t ... [Comments: 3]
When Our Chronically Ill Bodies Say “Rest,” Why Don't We? When Our Chronically Ill Bodies Say “Rest,” Why Don't We?
Reprinted with the kind permission of Toni Bernhard. Scheduling rest periods into your day can help tremendously. Most people who are ... [Comments: 2]
Special issue on the PACE Trial Special issue on the PACE Trial
Editor's note: This is the abstract for the editorial written by David Marks introducing a special edition of the Journal of Health Psych ... [Comments: 2]
CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy
Editor's Note:  This article originally appeared more than a decade ago, yet cognitive behavioral therapy (CBT) remains one of the most stud ... [Comments: 1]


More Treatment, Research & News »
ME/CFS in School Age Children ME/CFS in School Age Children
From Open Medicine Foundation Back to school time brings many challenges to parents of children with ME/CFS. We know that when ... [09/24/17]
Do you live in NYC? Your doctor can see Unrest for free! Do you live in NYC? Your doctor can see Unrest for free!
From #TimeforUnrest Jennifer Brea's award-winning documentary about ME, Unrest, is opening theatrically in New York this Fr... [09/23/17]
When Things Go Wrong, We Learn! When Things Go Wrong, We Learn!
I have to admit that for the last few weeks that I was in the UK, things went pear shaped with my self-help, and my health declined. Even be... [09/22/17]
VIDEO: BedFest 2017: Chronic Creatives Choir, What a Wonderful World VIDEO: BedFest 2017: Chronic Creatives Choir, What a Wonderful World
This is  a choir made up of people with chronic illnesses (most have M.E.). These patients are not well enough to join ordinary choirs,... [09/21/17]
Changing Hearts and Minds: A Review of Unrest Changing Hearts and Minds: A Review of Unrest
Reprinted with the kind permission of Cort Johnson and Health Rising. By Cort Johnson Unrest is about to spring into action. Sc... [09/19/17]


More Treatment, Research & News »
Not Just an Not Just an "Ill Person" - Ways to expand your identity when you're chronically ill
By Liza Karle Sometimes it’s easy to get engulfed by all of the symptoms and limitations of a chronic illness. It can seem as if we are t ... [09/11/17]
When Our Chronically Ill Bodies Say “Rest,” Why Don't We? When Our Chronically Ill Bodies Say “Rest,” Why Don't We?
Reprinted with the kind permission of Toni Bernhard. Scheduling rest periods into your day can help tremendously. Most people who are ... [08/17/17]
Renewing in Hope Renewing in Hope
For those of us who face chronic illness each day, thinking positive is not an easy task. It's not as if we dwell on the negative, yet t ... [08/20/17]
Staying Connected with Friends While Ill Staying Connected with Friends While Ill
One of the biggest challenges when living with chronic illness is loneliness and isolation. It can feel impossible to stay connected with ol ... [09/15/17]
Taking a Moment Taking a Moment
Reprinted with the kind permission of Julie Holliday. This morning, outside on my terrace, about to start my T’ai chi, I looked ... [08/27/17]


More Treatment, Research & News »
Staying Connected with Friends While Ill Staying Connected with Friends While Ill
One of the biggest challenges when living with chronic illness is loneliness and isolation. It can feel impossible to stay connected with ol ... [Stars: 5.00]
Roiling The Waters: Lipkin Speaks Out on Inadequate ME/CFS NIH Research Center Funding Roiling The Waters: Lipkin Speaks Out on Inadequate ME/CFS NIH Research Center Funding
Reprinted with the kind permission of Cort Johnson and Health Rising. By Cort Johnson It’s June 2017 – the Advisory ... [Stars: 5.00]
The Secret to Chronic Happiness as You Age The Secret to Chronic Happiness as You Age
By Bruce Horovitz and Kaiser Health News   By all rights, Fletcher Hall should not be happy.   At 76, the retired trade associ ... [Stars: 5.00]
Molecular Underpinnings of ME/CFS Explored at the Open Medicine Foundation Symposium Molecular Underpinnings of ME/CFS Explored at the Open Medicine Foundation Symposium
Reprinted with the kind permission of Cort Johnson and Health Rising. By Cort Johnson The Gist   ... [Stars: 5.00]
Community Symposium Summaries Now Published Community Symposium Summaries Now Published
From the Open Medicine Foundation.   As you have probably heard by now, our recent Community Symposium on the Molecular Basis of ... [Stars: 5.00]


More Treatment, Research & News »
ME/CFS in School Age Children ME/CFS in School Age Children
From Open Medicine Foundation Back to school time brings many challenges to parents of children with ME/CFS. We know that when ...
Do you live in NYC? Your doctor can see Unrest for free! Do you live in NYC? Your doctor can see Unrest for free!
From #TimeforUnrest Jennifer Brea's award-winning documentary about ME, Unrest, is opening theatrically in New York this Fr ...
When Things Go Wrong, We Learn! When Things Go Wrong, We Learn!
I have to admit that for the last few weeks that I was in the UK, things went pear shaped with my self-help, and my health declined. Even be ...
VIDEO: BedFest 2017: Chronic Creatives Choir, What a Wonderful World VIDEO: BedFest 2017: Chronic Creatives Choir, What a Wonderful World
This is  a choir made up of people with chronic illnesses (most have M.E.). These patients are not well enough to join ordinary choirs, ...
Changing Hearts and Minds: A Review of Unrest Changing Hearts and Minds: A Review of Unrest
Reprinted with the kind permission of Cort Johnson and Health Rising. By Cort Johnson Unrest is about to spring into action. Sc ...


More Treatment, Research & News »
Not Just an Not Just an "Ill Person" - Ways to expand your identity when you're chronically ill
By Liza Karle Sometimes it’s easy to get engulfed by all of the symptoms and limitations of a chronic illness. It can seem as if we are t ... [Comments: 3]
When Our Chronically Ill Bodies Say “Rest,” Why Don't We? When Our Chronically Ill Bodies Say “Rest,” Why Don't We?
Reprinted with the kind permission of Toni Bernhard. Scheduling rest periods into your day can help tremendously. Most people who are ... [Comments: 2]
When Things Go Wrong, We Learn! When Things Go Wrong, We Learn!
I have to admit that for the last few weeks that I was in the UK, things went pear shaped with my self-help, and my health declined. Even be ... [Comments: 1]
Renewing in Hope Renewing in Hope
For those of us who face chronic illness each day, thinking positive is not an easy task. It's not as if we dwell on the negative, yet t ... [Comments: 1]
ME/CFS in School Age Children ME/CFS in School Age Children
From Open Medicine Foundation Back to school time brings many challenges to parents of children with ME/CFS. We know that when ... [Comments: 0]


More Treatment, Research & News »
To Serve or Not to Serve: Ethical and Policy Implications To Serve or Not to Serve: Ethical and Policy Implications
By L. A. Jason Abstract The Institute of Medicine (IOM) is one of the nation's more influential health-related non-profit org ... [09/23/17]
Depression, evening salivary cortisol and inflammation in chronic fatigue syndrome: A Depression, evening salivary cortisol and inflammation in chronic fatigue syndrome: A
By S .F. Milrad et al.. Abstract INTRODUCTION: Chronic Fatigue Syndrome (CFS) is a poorly understood illness that is characterize ... [09/22/17]
Glial Cell Inhibitors: The Next Sleep Drugs for Fibromyalgia and Chronic Fatigue Glial Cell Inhibitors: The Next Sleep Drugs for Fibromyalgia and Chronic Fatigue
Reprinted with the kind permission of Cort Johnson and Health Rising   Sleep disturbances and severe stress as glial activators: key ... [09/20/17]
CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy
Editor's Note:  This article originally appeared more than a decade ago, yet cognitive behavioral therapy (CBT) remains one of the most stud ... [09/17/17]
Altered right anterior insular connectivity and loss of associated functions in Altered right anterior insular connectivity and loss of associated functions in
By L. A. Wortinger et al. Abstract Impairments in cognition, pain intolerance, and physical inactivity characterize adolescent chronic ... [09/11/17]


More Treatment, Research & News »
Exercise Tests Suggest Autoimmunity Causes the Exertion Problems in Chronic Fatigue Exercise Tests Suggest Autoimmunity Causes the Exertion Problems in Chronic Fatigue
Reprinted with the kind permission of Cort Johnson and Health Rising   Researchers and doctors get interested in ME/CFS in different ... [08/23/17]
Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory
Reprinted with the kind permission of Simmaron Research. By Cort Johnson There’s been a great deal of controversy and ... [08/14/17]
Is Poor Sleep Pummeling the Immune System in ME/CFS and Fibromyalgia? A Vicious Circle Is Poor Sleep Pummeling the Immune System in ME/CFS and Fibromyalgia? A Vicious Circle
Reprinted with the kind permission of Cort Johnson and Health Rising   Most people with chronic fatigues syndrome (ME/CFS) and fibrom ... [09/04/17]
Glial Cell Inhibitors: The Next Sleep Drugs for Fibromyalgia and Chronic Fatigue Glial Cell Inhibitors: The Next Sleep Drugs for Fibromyalgia and Chronic Fatigue
Reprinted with the kind permission of Cort Johnson and Health Rising   Sleep disturbances and severe stress as glial activators: key ... [09/20/17]
Is Chronic Fatigue Real? Is Chronic Fatigue Real?
Editor's note: Although Dr. Mercola makes a number of dietary recommendations, please keep in mind that patients with ME/CFS routinely su ... [08/26/17]


More Treatment, Research & News »
Cognitive behaviour therapy and objective assessments in chronic fatigue syndrome Cognitive behaviour therapy and objective assessments in chronic fatigue syndrome
By G. McPhee   Abstract   Most evaluations of cognitive behavioural therapy to treat people with chronic fatigue syndrome/m ... [Stars: 5.00]
PACE investigators' response is misleading regarding patient survey results PACE investigators' response is misleading regarding patient survey results
By K. D. Kirke   Abstract   The PACE investigators' citation of a patient survey might mislead readers into thinking that the ... [Stars: 5.00]
Physiological measures in participants with chronic fatigue syndrome, multiple sclerosis Physiological measures in participants with chronic fatigue syndrome, multiple sclerosis
By L. D. Hodges et al. Abstract   PURPOSE: To compare physiological responses of chronic fatigue syndrome (CFS/ME), multi ... [Stars: 5.00]
Glial Cell Inhibitors: The Next Sleep Drugs for Fibromyalgia and Chronic Fatigue Glial Cell Inhibitors: The Next Sleep Drugs for Fibromyalgia and Chronic Fatigue
Reprinted with the kind permission of Cort Johnson and Health Rising   Sleep disturbances and severe stress as glial activators: key ... [Stars: 5.00]
Contesting the psychiatric framing of ME/CFS Contesting the psychiatric framing of ME/CFS
By Helen Spandler and Meg Allen Abstract ME/CFS is a medically contested illness and its understanding, framing and treatment has been ... [Stars: 5.00]


More Treatment, Research & News »
CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy
Editor's Note:  This article originally appeared more than a decade ago, yet cognitive behavioral therapy (CBT) remains one of the most stud ...
To Serve or Not to Serve: Ethical and Policy Implications To Serve or Not to Serve: Ethical and Policy Implications
By L. A. Jason Abstract The Institute of Medicine (IOM) is one of the nation's more influential health-related non-profit org ...
Depression, evening salivary cortisol and inflammation in chronic fatigue syndrome: A Depression, evening salivary cortisol and inflammation in chronic fatigue syndrome: A
By S .F. Milrad et al.. Abstract INTRODUCTION: Chronic Fatigue Syndrome (CFS) is a poorly understood illness that is characterize ...
Glial Cell Inhibitors: The Next Sleep Drugs for Fibromyalgia and Chronic Fatigue Glial Cell Inhibitors: The Next Sleep Drugs for Fibromyalgia and Chronic Fatigue
Reprinted with the kind permission of Cort Johnson and Health Rising   Sleep disturbances and severe stress as glial activators: key ...
Altered right anterior insular connectivity and loss of associated functions in Altered right anterior insular connectivity and loss of associated functions in
By L. A. Wortinger et al. Abstract Impairments in cognition, pain intolerance, and physical inactivity characterize adolescent chronic ...


More Treatment, Research & News »
Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory
Reprinted with the kind permission of Simmaron Research. By Cort Johnson There’s been a great deal of controversy and ... [Comments: 3]
Special issue on the PACE Trial Special issue on the PACE Trial
Editor's note: This is the abstract for the editorial written by David Marks introducing a special edition of the Journal of Health Psych ... [Comments: 2]
CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy
Editor's Note:  This article originally appeared more than a decade ago, yet cognitive behavioral therapy (CBT) remains one of the most stud ... [Comments: 1]
Inflammation correlates with symptoms in chronic fatigue syndrome Inflammation correlates with symptoms in chronic fatigue syndrome
By Anthony L. Komaroff   It is not unusual for patients who say they are sick to have normal results on standard laboratory testi ... [Comments: 1]
Is Poor Sleep Pummeling the Immune System in ME/CFS and Fibromyalgia? A Vicious Circle Is Poor Sleep Pummeling the Immune System in ME/CFS and Fibromyalgia? A Vicious Circle
Reprinted with the kind permission of Cort Johnson and Health Rising   Most people with chronic fatigues syndrome (ME/CFS) and fibrom ... [Comments: 1]


More Treatment, Research & News »
CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy
Editor's Note:  This article originally appeared more than a decade ago, yet cognitive behavioral therapy (CBT) remains one of the most stud ... [09/17/17]


More Treatment, Research & News »
CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy
Editor's Note:  This article originally appeared more than a decade ago, yet cognitive behavioral therapy (CBT) remains one of the most stud ... [09/17/17]


More Treatment, Research & News »
CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy
Editor's Note:  This article originally appeared more than a decade ago, yet cognitive behavioral therapy (CBT) remains one of the most stud ... [Stars: 2.40]


More Treatment, Research & News »
CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy
Editor's Note:  This article originally appeared more than a decade ago, yet cognitive behavioral therapy (CBT) remains one of the most stud ...


More Treatment, Research & News »
CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy CFS/FM Insomnia Symptoms Effectively Treated with Behavioral Therapy
Editor's Note:  This article originally appeared more than a decade ago, yet cognitive behavioral therapy (CBT) remains one of the most stud ... [Comments: 1]


More Treatment, Research & News »

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Chronic Fatigue Syndrome & Myalgic Encephalomyelitis
Pin It
 Will it help me to eliminate gluten and milk?
Dr. Lapp is an internationally recognized expert in ME/CFS. He has written numerous articles and has spoken widely concerning ME/CFS and Fibromyalgia.
Will it help me to eliminate gluten and milk?
Q: Will it help me to eliminate gluten and milk? 
 
A: Many of our patients report intolerance to both gluten (wheat products, barley, and rye) as well as dairy products.  

These intolerances are rarely caused by true allergies to gluten (celiac disease or sprue) or dairy (milk protein allergy).

Researchers in Belgium have also suggested that many PWCs are intolerant of fructose as well.  

Consider avoiding each of these offenders for several days to see if it makes you feel less symptomatic.
 
... [more]

Inspirational Corner


When Things Go Wrong, We Learn!

When Things Go Wrong, We Learn!

I have to admit that for the last few weeks that I was in the UK, things went pear shaped with my self-help, and my health declin... [09/22/17]
Staying Connected with Friends While Ill

Staying Connected with Friends While Ill

One of the biggest challenges when living with chronic illness is loneliness and isolation. It can feel impossible to st... [09/15/17]
Not Just an

Not Just an "Ill Person" - Ways to expand your identity when you're chronically ill

By Liza Karle Sometimes it’s easy to get engulfed by all of the symptoms a... [09/11/17]
Taking a Moment

Taking a Moment

Reprinted with the kind permission of Julie Holliday. This morning, outside on my terrace, about to start my T’ai chi, I looked up a... [08/27/17]


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