August 6, 2007
Changing My E-mail Address?
Q: How do I change e-mail addresses with you in order to keep getting the newsletters? Also, in about two months, we will be moving and will have to use another ISP [Internet Service Provider] - again, another change. How do I change that one with you? There doesn't seem to be any place on the newsletter for an address change. Either I didn't notice it, or maybe it's time to create an area for this on the newsletter’s opening page.
A: Thank you for your very useful comment! Beginning with this issue, we have added an “Update e-mail” link to our list of Newsletter Tools on the opening page (toward the bottom in the left margin). Be sure to include your old e-mail address as well as the new. And if you’re not in the newsletter, you can always change your e-mail address by sending an e-mail to wellness@prohealth.com with E-mail Address Change in the subject line.
Also, be sure to “whitelist” wellness@prohealth.com with your new provider so you won't miss any newsletters. Usually just adding us to your address book is enough to whitelist us, but it is always good to check for instructions from your provider.
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How Do I Find a Doctor?
Q: I have just been diagnosed with Fibro. My doctor really has no idea about it and is giving me meds that give me no help. I need to find a doctor that understands my pain so I can get my life back. I live in Kenosha, Wisconsin, and will travel if I have to! – Emilie
A: There are several ways to go about finding a good FM doctor:
n Go to the The Co-Cure Good Doctors list, which you can always access, along with other info about locating a physician, in the Community section of ImmuneSupport.com http://www.immunesupport.com/community/. Next, click on the “Doctors” tab at the top of the community page, and you’ll see a number of links, including one to “The Co-Cure Good Doctors list.”
n You can also click on the “Support Groups” tab at the top of the Community page to go to a database of FM support groups. Who better to ask about FM doctors in your area?
n And maybe best of all, click on "Message Boards" to ask your question in the ImmuneSupport.com message boards (anonymous registration takes but a moment), and you’re almost sure to get advice from FM patients in your area.
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What Do LyricaR and NADH Have in Common?
Q: I have a question… My doctor gave me a sample of Lyrica a few weeks ago. [In late June, Lyrica - generic name pregabalin - became the first prescription drug to be FDA-approved for treating FM.] I was researching the Internet to get more information about this drug on my own. As I was doing so, an advertisement for NADH from your company came up as an advertisement on the Lyrica page. What do NADH and Lyrica have in common? – Susan
A: Supplement ads appear on article pages in the ImmuneSupport.com archives on a rotating basis and do not necessarily have any connection with the information in the article. Such is the case with our article on Lyrica – see “FDA Approves First Drug for Treating Fibromyalgia” - and NADH. There is no connection between the two, except perhaps that both may support improved quality of life for individuals with FM symptoms. Lyrica is a pharmaceutical drug aimed at reducing pain, while NADH is a natural dietary supplement known to support the body’s production of the cellular energy fuel ATP. See the article by Naturopathic Doctor Scott D. Olson titled “NADH’s Possible Benefit for CFS and FMS.”
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Is Eczema Related to FM?
Q: I am wondering if eczema could be related to Fibromyalgia and a compromised immune system. My doctor said it is caused by my body "turning on itself" and I find that when I am experiencing a flare up of the Fibromyalgia, I also have to deal with the eczema flaring up. I did not have this skin condition as a youth… – Jacky
A: Although Fibromyalgia was once thought to be an autoimmune disease, years of research have failed to turn up any virus, bacteria, or immune disorder. What researchers are finding is that FM is a central nervous system disorder that results in central sensitivity. While we usually think of this hypersensitivity primarily in terms of pain, many FM patients also exhibit sensitivity in other areas, including allergies and skin disorders. This could help explain why an FM flare (increased sensitivity to pain) might be accompanied by an eczema flare (increased skin sensitivity).
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Looking For Support in the UK
Q: I live in East Yorkshire, England. I was diagnosed with Fibromyalgia five years ago after suffering symptoms for five years prior to diagnosis. I’m finding it really difficult to find fellow sufferers to chat with in my neck of the woods. I have three children who have grown up with a mother who is chronically tired for most of the time and in a lot of pain. I think they would benefit from contact with other youngsters who may know how they feel. Maybe you have members who might be able to help. – Donna
A: There is an excellent Fibromyalgia nonprofit organization in the UK called Fibromyalgia Association UK (http://www.fibromyalgia-associationuk.org). At the top of their website, click on “Support Groups” to find the group nearest to you. The FMA UK also offers a number of opportunities and events, including conferences and Awareness Day activities. They should be able to help you find other FM-ers to talk with.
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Note: This information has not been evaluated by the FDA. It is generic, for general information purposes only, and is not meant to prevent, diagnose, treat, or cure any condition, illness, or disease. It is very important that you make no change in your healthcare plan or health support regimen without researching and discussing it in collaboration with your professional healthcare team.
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