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National Press Conference on CFS Awareness Campaign November 3

  [ 232 votes ]   [ Discuss This Article ] • October 18, 2006

Mark this historic date on your calendar and tune in: Friday November 3, 10:00 a.m. to 11:00 a.m. Eastern Standard Time.

At this hour, the National Press Club in Washington, DC, will host a press event announcing the $4 million CFS Public Awareness Campaign to the world’s media. Leaders of the CFS research, patient, and advocacy communities will speak, preview educational broadcast ads, and provide statistics and facts about CFS – against the backdrop of the 17-foot “Faces of CFS” traveling photo exhibit banners.

Additionally, a number of the CFS patients who are featured in the Faces of CFS exhibit will be present to represent their many fellow patients in person.

We will report more details as plans for the event firm up. But a few facts about the CFS Awareness Campaign are that:
n It is already a significant presence in the media and in public venues – with coverage centered around appearances of the Faces of CFS traveling exhibit – and will extend through 2007.
n It is being funded by the health marketing arm of the Centers for Disease Control (specifically, by the CDC’s health marketing arm, and therefore does not deplete the agency’s CFS research funding budget).
n It is being implemented by The CFIDS Association of America.
n It was initially scheduled to launch to the national press on June 7, 2006, but the CDC decided to reschedule the debut to a time when its latest CFS research findings would hit the news.
n "The campaign delivers vital information about who is at risk for CFS, the symptoms of the illness, treatment and management options, the importance of seeking diagnosis and treatment, and the impact of CFS illness on both patients and family members,” according to The CFIDS Association.
n It “is intended to ignite interest in CFS and spark increased understanding about the illness among the general public, health care professionals, legislators and the media,” The CFIDS Association adds – “and has the potential to increase research funding for CFS from federal, biotech and pharmaceutical sources over the next decade.”

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