ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

On-and-off fasting helps fight obesity, study finds

Can Pomegranates Slow Aging?

Calorie restriction promotes longevity through effects on mitochondrial network

Discover Why Ashwagandha Can Be Used for Stress and Anxiety

How Can You Benefit From Vitamin B12?

A spoonful of oil: Fats and oils help to unlock full nutritional benefits of veggies, study suggests

Lower magnesium levels linked with increased mortality risk during up to 40 years of follow-up

Higher resveratrol dose linked to lower glucose levels in type 2 diabetics

What Is Bitter Orange?

Drug can dramatically reduce weight of people with obesity

 
Print Page
Email Article

Riding the Chronic Illness Roller Coaster

  [ 25 votes ]   [ 3 Comments ]
By Suzan L. Jackson • www.ProHealth.com • July 25, 2015


Riding the Chronic Illness Roller Coaster
The song "Helter Skelter" (originally by The Beatles) often goes through my mind when I go from feeling fine one day to being badly crashed the next. It resonates with my sense of climbing up only to find myself on a ride back down again. For those of us with ME/CFS and fibromyalgia, life is like a roller coaster. Not everyone with ME/CFS or fibromyalgia experiences physical ups and downs – some people feel about the same every day – but all of us living with chronic illness deal live with an emotional roller coaster. Kubler-Ross famously identified five stages of grief: denial, anger, bargaining, depression, acceptance. What many people don’t realize is that these stages don’t occur linearly and aspects that you think you are done with (like anger or depression) can recur over time.

I have found this to be very true in my own life. I certainly experienced all of those stages of grief at the beginning of my illness and even got stuck in depression for a while. For the most part, I feel that I am fully in acceptance mode now, 13 years later. However, once in a while, those other emotions still appear and surprise me.

I am generally a very happy, optimistic person. That’s just my natural temperament, and I am usually content with my life, even with chronic illness. I’ve made peace with my new normal and accept my limitations; I’ve learned to find joy within my restricted life. Every once in a while, though, even after 13 years, despair will just hit me with the force of a tidal wave. I’ll suddenly feel depressed, abandoned, and like a failure. I’ll cry and grieve over all the things I can no longer do. This dark state of mind might last for a day or two and then I gradually come back to my normal, happy self – riding the emotional roller coaster.

I’ve learned over the years that these sudden storms of despair often accompany a physical worsening of symptoms or a crash. That tells me it is tied to the biochemistry in my brain. It helps a bit to understand this, though it is hard to be logical in the midst of that darkness.

So, what helps when I hit bottom? The first key is to recognize that what you are feeling is normal and natural and will eventually pass. This is easier said than done! Those feelings are very real when you are in the midst of them, and it can be hard to remind yourself that you are at the mercy of changing biochemicals. However, reminding myself that these are transient feelings that will pass, just as they have before, can help immensely. I think of it as riding the wave – allowing myself to feel what I am feeling, while acknowledging that it is temporary.

Over the years I have developed some other coping mechanisms when despair hits:
  • Think about/write down what you are grateful for. It helps to remind yourself that things aren’t as black as they seem, that you still have some positive things in your life – family, friends, good books, birds singing outside your window. I wrote previously here about keeping a Joy Journal (“Finding Joy in Every Day”) – writing down each day the little things that brought you joy – and that can help now, too.

  • Reach out to others. These illnesses are isolating anyway and even more so when you are feeling emotionally low. If you have understanding friends or family, tell them you are feeling down. Just sharing those feelings with a loved one can help. (Make sure it is someone who can be empathetic and not make things worse.) You can also share your feelings online with others who you know will understand, in discussion groups or Facebook groups for your illness. For me, that often means writing a blog post, and I am always comforted by the outpouring of support and understanding when I do admit to feeling down.

  • Take care of yourself. Focus on your own needs and do things that you enjoy: read a good book, watch a favorite TV show or movie (a funny one is even better!), take a nap, listen to an audiobook. Do whatever brings you comfort.

  • Be kind to yourself. If you are going through a bad period emotionally (or physically), don’t try to be productive and get things done or push yourself in any way. Indulge in comforting rituals, like a favorite herbal tea, a piece of dark chocolate, staying in bed. Don’t berate yourself for feeling down. Let others take care of you.

  • Help others. It may sound counter-intuitive, but helping other people can be a great way to help yourself. It feels good to be of use or to know that you helped someone. Reach out through your social media networks, chronic illness groups, or to close friends or family. Helping others has been one of the biggest unforeseen benefits of our illnesses in my family.

If none of these kinds of things work or you are stuck in a serious depression that lasts more than a few days, seek professional help. Start with a local referral service or search online. Look for a therapist who has experience with chronic illness. (Call the office and ask that question before you book an appointment.) If you are too sick to leave the house or can’t find anyone locally, look online – there are therapists specializing in chronic illness who will work with you via Skype. In my first few years of chronic illness, I struggled to adjust to my new life of limitations; when my two sons also got sick, I sunk even deeper into despair. I found a wonderful local psychologist (through my husband’s workplace referral service) who had a grown son with ME/CFS. She understood what I was going through and helped me immensely.

Most of all, I have learned to focus on one day at a time. Considering a lifetime with this illness is too overwhelming. Thinking about all that I want to do with my life in light of my current restrictions is just too depressing. It’s better to focus on small goals, on getting through each day, even each hour, and taking care of myself now. Those black feelings will come sometimes, but I know they will also pass.

_______________

Suzan Jackson is a freelance writer who has had ME/CFS for 13 years. Both of her sons also got ME/CFS, but one is now fully recovered after 10 years of illness and the other is in college. She writes two blogs: Learning to Live with ME/CFS (with an emphasis on LIVE!) at http://livewithcfs.blogspot.com and Book By Book at http://bookbybook.blogspot.com.



Post a Comment

Featured Products From the ProHealth Store
Optimized Curcumin Longvida® Mitochondria Ignite™ with NT Factor® Ultra ATP+, Double Strength


Article Comments Post a Comment

CFS
Posted by: quilter1088
Jul 27, 2015
Thank you for an article that says how i feel.
As far as living with this illness my whole life---it is still upsetting.
I became sick in January 1970...My life was drastically changed forever. My daughter was 15 months old...The flu hit me like a Tornado.Brain fog was every day & still is.
Growing old with CFS is OK--it could be worse.I have the good days & bad days .Brain fog though never goes away.
I had a second child in 1971.I was so sick all the time ,i told my husband that i was not going to live long.Well--i am now 68,a 45 year survivor. This is my normal.
Sadly doctors look at me with a blank stare when i even mention CFS.
Fatigue is a major symptom,but there are so many other symptoms.

Praying for cure every day--there is always hope!
Linda
Reply Reply

Reply To Linda -
Posted by: suejackson
Jul 30, 2015
Thank you for taking the time to share your story, Linda. I'm glad you could relate to my article here, though I am sorry to hear you have suffered for so long.

One thing you might consider: when brain fog is such an unrelenting symptom, untreated infections are often present. Diagnosing these (whether they are reactivated viruses or Lyme disease or other infections - all of which are common in ME/CFS patients) and treating them can often bring dramatic results. Most people - myself included - who have been treated with antivirals find that the first improvement they notice is improved mental clarity.

If you want help finding a doctor who can help you with this sort of treatment, let me know.

All the best to you - thanks for taking the time to comment -

Sue
Reply Reply

I am living this roller coaster 5 yrs now
Posted by: srambo
Aug 7, 2015
Sometimes friends and family just look at me. They see the outside and don't understand what is going on in the inside. This article says it all for me. Thanks!
Reply Reply


Post a Comment

 
Optimized Curcumin Longvida with Omega-3

Featured Products

Optimized Curcumin Longvida® Optimized Curcumin Longvida®
Supports Cognition, Memory & Overall Health
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
Vitamin D3 Extreme™ Vitamin D3 Extreme™
50,000 IU Vitamin D3 - Prescription Strength
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium

Natural Remedies

Pioneer Scientists Uncover a Revolutionary Neuroprotective Supplement for Nerve Health Pioneer Scientists Uncover a Revolutionary Neuroprotective Supplement for Nerve Health
Milk Thistle: Trusted Support for Health & Healing in a Toxic World Milk Thistle: Trusted Support for Health & Healing in a Toxic World
The Genetic Mutation That May Compromise Your Health - And What to Do About It The Genetic Mutation That May Compromise Your Health - And What to Do About It
Restoring Gut Health: How to Create a Firewall Against Toxins Entering the Gut Wall Restoring Gut Health: How to Create a Firewall Against Toxins Entering the Gut Wall
How to Jump-start and Sustain Energy Production in CFS How to Jump-start and Sustain Energy Production in CFS

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE TO OUR NEWSLETTERS
Get the latest news about Fibromyalgia, M.E/Chronic Fatigue Syndrome, Lyme Disease and Natural Wellness

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2017 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map