ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

Can Autoimmune Conditions be Reversed? Researchers Make a Surprising Discovery

How One Tiny Molecule Turned into One Huge Health Breakthrough

Nutrients Boost Stem Cell Function

Humans have three times more brown body fat

B12 Proven Essential for Every Cell

Soy isoflavones may benefit breast cancer patients

How B Vitamins Improve Brain Health, Cognition, Psychiatric Problems and Mood Disorders

Dietary prebiotics improve sleep, buffer impacts of stress, says study

Ylang Ylang Oil Not Only Soothes Your Skin, but Your Mind as Well

Exercises to Help Prevent Urinary Incontinence

 
Print Page
Email Article

A Profile of ME/CFS Patients - How Many Years and How Many Doctors?

  [ 205 votes ]   [ Discuss This Article ]
www.ProHealth.com • May 16, 2008


Results of an ME/CFS Patient Survey

Recently, more than 1,200 patients diagnosed with ME or ‘Chronic Fatigue Syndrome’ took a survey posted in ProHealth’s ME/CFS newsletter. The following results – statistics on patient age, length of illness, and years/number of doctors required to receive a diagnosis - may contribute to a sharper picture of the ME/CFS community and their challenges.

ProHealth ran this survey at the suggestion of Encounters with the Invisible author Dorothy Wall and ME/CFS doctor Lily Chu, MD, MPH. Wall and Chu are researching information for a public education article on ME/CFS, and have found that answers to these types of questions are not easily available in the research literature. We also recognize that this group of diagnosed patients is a minority - since as reckoned by researchers at the CDC and DePaul University, about five of every six ME/CFS sufferers in the U.S. are still undiagnosed.* ME/CFS Public Education Survey Questions

1. How old are you?
The majority (76%) are between ages 30 and 60

Under 20....17.....1%
20-29........76......8%
30-39.......189....16%
40-49.......329....27%
50-59.......401....33%
60-69.......173....14%
70-older.....34......3%
____________________
Total.......1219....100%**

2. How long have you been ill with ME/CFS?
One in three have been ill for more than 15 years, and one in five for more than 20

Under 1 year.....15.....1%
1-5 years........258....21%
6-10 years......318....26%
11-15 years....211....17%
16-20 years....188....15%
20+ years.......227....19%
_______________________
Total.............1217...100%

3. How long did it take you to be diagnosed with ME/CFS by a healthcare provider?
29% had been ill from 6 to 20-plus years before being diagnosed.

Under 1 year....275....23%
1-5 years.........579....78%
6-10 years.......171....14%
11-15 years.......80......7%
16-20 years.......53......4%
20+ years..........52......4%
________________________
Total..............1210....100%

4. How many healthcare providers did you see before you were diagnosed?
44% saw from 5 to more than 20 doctors before being diagnosed

1-4 doctors........679....58%
5-9 doctors........336....28%
10-15 doctors.....110.....9%
16-20 doctors.......34.....3%
More than 20........53.....4%
_________________________
Total.................1212....100%

___
* Researchers at the CDC and DePaul University put the number of Americans with ME/CFS at about 900,000 - and estimate that between 80% and 90% of them are undiagnosed and not receiving proper medical care. (See "The Face of CFS in the U.S." by Dr. Leonard Jason, et al.)

** Totals differ slightly as not all respondents answered all questions




Post a Comment

Featured Products From the ProHealth Store
Ultra ATP+, Double Strength Vitamin D3 Extreme™ FibroSleep™

Looking for Vitamins, Herbs and Supplements?
Search the ProHealth Store for Hundreds of Natural Health Products


Article Comments



Be the first to comment on this article!

Post a Comment


 
NAD+ Ignite with Niagen

Featured Products

Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils
Optimized Curcumin Longvida® Optimized Curcumin Longvida®
Supports Cognition, Memory & Overall Health
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
FibroSleep™ FibroSleep™
The All-in-One Natural Sleep Aid

Natural Remedies

Can Glycine + Amino Acids Be the Secret to Deep, Rejuvenating Sleep? Can Glycine + Amino Acids Be the Secret to Deep, Rejuvenating Sleep?
Relief for Dry, Itchy Skin Caused by Fibromyalgia Relief for Dry, Itchy Skin Caused by Fibromyalgia
Everything You Always Wanted to Know About Sleep But Were Too Tired to Ask Everything You Always Wanted to Know About Sleep But Were Too Tired to Ask
Secret Nutrient for Radiant Skin Secret Nutrient for Radiant Skin
The Guaifenesin Story: A centuries-old bark extract used for clearing the airways – now key to a popular FM symptom-reversal protocol The Guaifenesin Story: A centuries-old bark extract used for clearing the airways – now key to a popular FM symptom-reversal protocol

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE TO OUR NEWSLETTERS
Get the latest news about Fibromyalgia, M.E/Chronic Fatigue Syndrome, Lyme Disease and Natural Wellness

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2017 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map