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CFS Advisory Committee Meeting - Live Online Oct 29-30

  [ 102 votes ]   [ Discuss This Article ]
www.ProHealth.com • October 28, 2009


HHS has posted an agenda for the CFSAC meeting in Washington DC, today and tomorrow, Oct 29 & 30. This gathering could mark a new chapter in ME/CFS research, and the ME/CFS world is invited to watch it all, live.

To Access and Print the Agenda… www.hhs.gov/advcomcfs/meetings/agendas/cfsac091029_agenda.html

The Event is Being Videocast Live on the Web…
Starting at 9:00 Thursday EDT (at http://videocast.nih.gov/)
For the time where you live, use the World Clock Time Zone Converter

To Prepare in Advance for Viewing the Two-Day Videocast…

• You will need to have RealPlayer installed, and you can download the latest version at http://videocast.nih.gov/faq/#software

• You can test your computer and network connection at http://videocast.nih.gov/BrowserTest/

Topics Clearly Indicated in the Agenda…

• Dr. Daniel Peterson, MD, from the Whittemore-Peterson Institute, will give a presentation starting at 10:15 am on Oct 29 on “XMRV Association with CFS.”

• Dr. David S. Bell, MD, will Speak on “CFS and FII/MBP” – the issue of suspected “fabricated and/or induced illness in children/Munchausen by Proxy” as it relates to ME/CFS - at 3:30 pm

• There will be three public comment time slots, two on day 1, the third on day 2.

Several Time Slots for “Committee Discussion” are Listed for Both Days…

Though no topics are listed in the agenda, the focus will certainly be the CDC’s 5-year CFS research plan, finally published online Oct 23. As Dr. Fred Friedberg, President of the IACFS/ME, has stated "This is a critical meeting because the future of $25 million in public funding for CFS research at the Centers for Disease Control will be discussed." (See his message underscoring the need for a show of community involvement.)

Also expected in this meeting is announcement of new CFSAC members selected to replace members who will step down in January. The retiring members are scheduled to make brief comments at the close of day 2.

If You Can't Watch it All...

The videocast will be archived for free access "within a few days" at: http://videocast.nih.gov/PastEvents.asp




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