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Invest in ME to fund WPI study of XMRV in UK/European patients

  [ 78 votes ]   [ 1 Comment ]
www.ProHealth.com • March 5, 2010

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Mar 5, 2010 - In December 2009 Invest in ME (www.investinme.org) announced its plans to attempt to fund research by Dr. Jonathan Kerr. This was in conjunction with the charity ME Solutions, and we wished to maximise the opportunities to fund research into ME/CFS. The research project was:

The role of XMRV in modulation of NK cell cytotoxicity and NK cell gene abnormalities in ME/CFS patients and normal blood donors

Recently Dr Kerr informed us that he was withdrawing the grant application, as a study in which he was involved has shown no XMRV in ME/CFS patients.

This now means that the fund-raising for this particular project will be halted.

Invest in ME have contacted those supporters who have donated funds specifically to aid this particular project and we have offered to refund the donations. We are happy to announce that all our supporters have requested that we retain the funds donated and use them for biomedical research.

The supporters of IiME, those who fund and those who provide moral and other support, are the finest in the ME community. These supporters remain, for the most part, anonymous yet they continue to be the source of our determination to continue to campaign for biomedical research and raise awareness and improve education about myalgic encephalomyelitis.

Therefore, we are planning on helping the Whittemore-Peterson Institute directly by offering to fund some important work on XMRV in UK/European patients.

We know this may not be a massive contribution in the grand scheme of things but we feel it is important to give as much financial support, and all the moral support that we can at this time to the WPI and their research colleagues.

We hope to have more news soon.

Invest in ME will continue to campaign for biomedical research into ME and we hope to be able to fund more such work in the future.
___
[Note: Invest in ME is a UK-based charity dedicated to funding important ME/CFS-related biomedical research. Annette Whittemore, founder and president of the Whittemore-Peterson Institute, will address the IiME International ME/CFS Conference to be held May 24 in London.]



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This is backwards!!
Posted by: kemist99
Mar 6, 2010
I don't get it. Shouldn't other labs be testing the samples from the WPI not the other way around? Anything the WPI group does at this point is going to be highly suspect and the bar for scientific rigor from a study from them will be equally as high. It is unclear to me if the UK groups just never requested samples from WPI or if samples were requested and not sent. The entire debate over XMRV could be ended with one study from an independent group taking samples from both the WPI and the UK cohorts. The fact that this has not been done yet is simply bizarre. I would have thought it a no brainer to include at least two positive control samples from the WPI and a few blinded samples as well in any study involving XMRV and CFS patients. Now we are 4 studies deep into this mess and no closer to an answer. Money is being wasted as well as critical time for CFS suffers.
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