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CFIDS Assoc. Post-Exertion Malaise Webinar, Thursday, July 19

  [ 14 votes ]   [ 2 Comments ] • July 12, 2012

July 19 Update: On Thursday, July 19 at 2 pm EST, the CFIDS Association of America hosted a webinar on the information that ME/CFS patients ask for most – post exertion relapse. It is now over.

The webinar - "Top 10 Things You Need to Know about Post-Exertion Relapse” - will feature the Pacific Fatigue Lab’s exercise physiologists Staci Stevens, Chris Snell, and Mark Van Ness.

This trio of fatigue analysts has worked for years, helped by CFIDS Association funding, to develop: 1) measures of post-exertion malaise (PEM), as a diagnostic test for chronic fatigue syndrome, and 2) measures of multiple body system functions as part of comprehensive disability evaluations.

Your questions invited. You can help shape their presentation by submitting any questions you have when you register.

REGISTER for the webinar at 

Please Discuss This Article:   Post a Comment 

PEM not ubiquitous in ME
Posted by: IanH
Jun 28, 2012
We have found that PEM is not present in some people with ME. Examples include people tested for ME at the cellular level eg with the following markers:
Low NKC bright cell function and number
elevated TNFalpha and IFN gamma
Orthostatic intolerance
Chemical hypersensitivity
Post exertional fatigue (but not malaise)
Chronic diarrhea
periodic swollen lymph nodes
Urinary frequency
and others.

Those with MCS show post chemical exposure malaise

This tells us that the malaise is possibly due to a rise in ROS, whether it is due to exertion or toxic exposure or even psychological stress. The exertion is then probably physiologically stressful as is chemical exposure and psychological stress. It should be called post-stressor malaise.
Reply Reply

IanH's info a good question for seminar
Posted by: Minnesota
Jun 29, 2012
It would be good to submit a question about whether they have found subsets regarding PEM. If so, what does it mean diagnostically.
Reply Reply
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