Today, without any prior notice to committee members of the public, the Department of Health and Human Services announced that the charter for the Chronic Fatigue Syndrome Advisory Committee (CFSAC) was allowed to expire.
Formed in 2002, CFSAC was the ONLY federal entity focused entirely on ME/CFS. It included many relevant federal agencies, including NIH (National Institutes of Health), CDC (Centers for Disease Control and Prevention), the VA (Veteran’s Administration) and the SSA (Social Security Administration).
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Sadly, out of all the discretionary committees under Health and Human Services, it seems that CFSAC was the ONLY committee that the administration has chosen to eliminate.
Solve ME/CFS Initiative is launching a Call to Action, demanding congress to take action and pass legislation to ensure ME/CFS is represented, funded, and that a new ME/CFS Federal Advisory Committee is created. Join us by sending your own message to congress using the template below. Pull in other language from my comments.
Take action HERE.