Fibromyalgia Patient Advocacy

Fibromyalgia-Patient-Advocacy

Advocacy plays an important role in any illness, but for illnesses that are not well accepted in the medical community, advocates are crucial.

Advocates are responsible for lobbying representatives to help increase research funding. They sponsor conferences, which allow researchers to share their findings and provide an avenue for physicians to stay up to date on the latest developments.

Advocates organize fund-raising campaigns for research, and increase public awareness of the illness and how it affects patients. They initiate petition drives, start support groups, and post commentary on their blogs about events that directly affect the welfare of patients.

On a personal level, advocates are responsible for making sure ill children and their families are protected, and their civil rights upheld.

Many people are too ill to do advocacy work, but anyone can participate by signing a petition, or sending an email, or a posting a tweet when events that affect our community arise.

The cumulative effect of advocacy efforts, from organizing major fund-raising drives to simply signing a petition, is that all of our lives are made easier.

Advocacy Sites for Fibromyalgia:

 

National Fibromyalgia & Chronic Pain Association (NFMCPA)
http://www.fmcpaware.orgNational Fibromyalgia Partnership, Inc. (NFP)
http://www.fmpartnership.orgFibromyalgia Association UK (FMA UK)
http://www.fmauk.org
Fibromyalgia Coalition International (FCI)
http://www.fibrocoalition.orgAmerican Fibromyalgia Syndrome Association, Inc. (AFSA)
http://www.afsafund.orgH.O.P.E. (Helping Our Pain & Exhaustion)
http://www.hffcf.org

 

Fibromyalgia Advocacy News:

 

VIDEO: “In Their Own Words” — 2015 INvisible Project video
The INvisible Project is unveiling the truth about what it means to live with pain. By informing the public about different rare conditions and pain diseases, it engages them to take action and stand with us. This project removes barriers to pain care and empowers us all to be proactive.
Rally Against Pain
Veterans and Americans United for Equality in Medical Care, a chronic pain advocacy group, is planning a Rally Against Pain at the Ellipse in Washington, DC, on October 22, 2016.

 

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