TickEncounter Resource Center
USA – NATIONAL
Global Lyme Alliance
Lyme Research Alliance
Website features: General information, research, support group referrals, doctor referrals and news.
Tick-Borne Disease Alliance
Website features: General information, doctor referrals, diagnostic tests, events, treatments, blog and news.
Lyme Disease Association, Inc. (LDA)
Website features: New, resources, general information, physician referrals, grants, legislation, prevention, statistics, and scientific articles.
Lyme Disease Network
Our funding comes from individuals and businesses that have been touched by this disease. We have no affiliation with any health care provider or corporation. We currently do not receive funding from government sources, although we have submitted applications for such funding to support our project.”
Website features: General information about the diagnosis, symptoms and treatment of Lyme, research abstracts, newsletter, library, links, support group list, and pointers to other information sources on the Internet.
LymeDisease.org [formerly CALDA]
“LymeDisease.org is a non-profit corporation that is a central voice for Lyme patients across the nation through advocacy, education and research. Since 1989, LymeDisease.org (formerly CALDA) has been revolutionizing the Lyme disease arena in public policy, advocacy, and science. Our grassroots membership and state-based online network reach thousands, providing a powerful voice for patients across the country. We seek the hard truths, ask the tough questions, and are not afraid to rock the boat.”
Website features: General information, co-infections, prevalence, prevention, issues of Lyme Times, support groups, activism, resources, research, map, and information in Spanish.
Provides information on Lyme literate doctors, treatment protocols, Tricare Help, alternative treatments, Lyme-related political issues.
USA – STATE AND REGIONAL
Alabama Tick Disease Awareness Coalition
Northern Arizona – Tina Caskey
Southern Arizona – Donna Hoch
Bay Area Lyme Foundation
Newtown Lyme Disease Task Force
Ridgefield Lyme Disease Task Force
Ridgefield Lyme, Chronic Fatigue and Fibromyalgia Support group meets 2nd Thursday every month at 12 noon at the Ridgefield Visiting Nurse Association, 90 East Ridge, Ridgefield, CT 06877
District of Colombia
Mississippi Valley Lyme Disease Network
Quad-Cities Lyme Disease Network
Iowa Illinois Lyme Network (ILLOWA Lyme Network) Davenport, Iowa
Iowa Lyme Disease Association Brighton, Iowa
Kent Larsen – Public Relations Officer
SEWILL (Southeastern Wisconsin & Illinois Lyme Leagues)
Features: Information packets for patients and physicians; education packets for school nurses; monthly newsletter, “Prime Time Lyme”; publishing a brochure, “Lyme Disease is on the Rise”, and other informational literature; monthly meetings for patients; email and phone support; distribution of information at health fairs and conferences; presentations to community groups.
Support Group: 4th Thursday of month (except no meetings in Nov. or Dec.) 6:30pm meets at Community Center at St. Joseph Hospital, I-435 and State Line Road, Kansas City, MO 64114
Kansas Lyme Fighters, Inc. (Affiliate of the Lyme Disease United Coalition) Lawrence, Kansas
N-KY Chapter – Tri state Lyme – Vine S.G. Independence, KY
KY Lyme Disease Awareness Lexington, Kentucky 40505
Louisiana Borreliosis Association Sieper, LA
“Dedicated to educating the public concerning the prevention, diagnosis and treatment of Lyme and tick-borne diseases.”
Website features: Support groups, information in Spanish, information in French, doctor referrals, handouts, lab tests, conferences, legal cases, pregnancy, misdiagnoses, political action, grants, news and treatment.
Mid-Shore LDA, Inc.
Features: Support group meetings and sponsors special programs and events.
Howard County Chronic Lyme and Associated Disease Association
Lyme Disease Association of the Eastern Shore of Maryland
LDA Cape Cod Chapter
Serves all of Cape Cod and beyond. Provides Education and Patient Support. Support Group: Brewster Support Group meets 3rd Sunday every month (3 to 4:30pm) at Satucket Road – Cape Cod Covenant Church
E-mail Nancy with questions:
Serves Northern Berkshire County, Western MA, Southern Vermont and Upstate NY.
Lyme Disease Association of Ann Arbor Ann Arbor, Michigan
Michigan Lyme Disease Association
Provides support and conduct educational and information activities to increase the public’s awareness of Lyme disease and other tick-borne illnesses, supports continuing education courses for nurses and physicians, sponsors community programs on tick-borne diseases, holds forums for elected officials and participates in community events.
Serves Kansas and Missouri
Mid Missouri Tick Illness Coalition
St. Louis Lyme Foundation
Support group meets second Tuesday of every month at Rainbow library, 10am, conference room.
Bedford Lyme Disease Council
The group meets on the second Thursday of every month from 6:30pm to 9pm in the Richmond Room at the Bedford Public Library.
Finger Lakes Lyme
Greene County Lyme Help
Long Island Lyme Association – LILA
Lyme Borrelia Out-Reach Foundation Inc.
Lyme Disease Coalition of New York and Connecticut
This is not a support group. They work to promote research on Lyme.
Lyme in Orange
Hudson Valley Lyme Disease Association
Areas Served Hudson Valley, NY (including Dutchess and Ulster Counties, collaborative presence in other counties.)
Provides patient support, community education, advocacy. Collaboration with “Stop Ticks on People” (www.stopticks.org), Participation in Assemblyman Joel Miller’s annual Health Fair, Programs for “May Is Lyme Awareness Month,” significant presence, with literature tables, at various community events, including multiple showings of “Under Our Skin”, at least one special speaker program per year, representation on Dutchess County Legislative Task Force and Rockland County Vector Borne Disease Advisory Committee.
LDA Corning/Finger Lakes Area Chapter
Areas Served Corning and the Finger Lakes Region of New York State
Provides Education and Patient Support, Educational In-Services, Presentations, Forums, and Informational Sessions
Stop Ticks on People
Oregon Lyme Disease Network
Office hours are 8:00-5:00 but messages may be left at any time. Calls are sometimes returned in the evenings.
LDA of Southeastern Pennsylvania, Inc.
Greenville Lyme Advocacy Group
Texas Lyme Disease Association, Inc.
National Capital Lyme Disease Association – Central Virginia Chapter
Richmond Chapter of the National Capital Lyme and Tick-borne Disease Association
Lyme Coalition of Northern Wisconsin
Southeastern Wisconsin & Illinois Lyme Leagues (SEWILL)
International Lyme and Associated Diseases Society
The International Lyme and Associated Diseases Society (ILADS) is a nonprofit, international, multidisciplinary medical society dedicated to the appropriate diagnosis and treatment of Lyme and associated diseases. ILADS promotes understanding of Lyme and associated diseases through research, education and policy. We strongly support physicians, scientists, researchers and other healthcare professionals dedicated to advancing the standard of care for Lyme and associated diseases.
The Lyme Disease United Coalition is a 501 (c)(3) Non Profit corporation-tax exempt. The mission of the Lyme Disease United Coalition (LDUC) is to advocate for patients who have tick-borne illness resulting in Lyme Disease (LD), Babesia, Bartonella, Rocky Mountain Spotted Fever, Anaplasmosis, Tularemia, Powassan Encephalitis, Q Fever, or Ehrlichia. The care of the Lyme disease patient is our number one priority, throughout the United States, Canada, and the remainder of the world. The LDUC’s purpose, secondarily, is to educate the public and physicians regarding the emergence of tick-borne illness throughout the world.
Karl McManus Foundation
The Lyme Disease Association of Australia (LDAA) is an association comprised of volunteers committed to making changes to how Lyme disease patients are treated – both medically and personally. This is achieved through undertaking activities in four key areas of information, support, education and awareness.
CanLyme is a registered non-profit charitable organization run by volunteers from coast to coast. The Canadian Lyme Disease Foundation is dedicated to promoting research, education, diagnosis and treatment of Lyme and associated diseases.
Lyme Action Group
This non-profit group, which operates on a completely volunteer basis, was convened by concerned persons who want to see much needed change in Canada’s medical system. Lyme patients need access to reliable tests in Canada. Our medical practitioners need access to up-to-date information on Lyme disease. Canada’s doctors should be free to treat Lyme and Chronic Lyme disease without fear of persecution or prosecution.
“The primary objective of LymeAid UK is to provide grants to people on low income who suspect they have Lyme Borreliosis for private overseas testing for the disease.”
Lyme Disease Action
“Lyme Research UK consists of a group of researchers whose main aim is to explore and engage with research, that is related to policy and practice on Tick-Borne Infections (TBI’s) in the UK and Eire.”