From Our Readers – Comments & Suggestions 07-28-10

Key to Preventing Problems with Dairy Identified

Re: “To prevent cow’s milk allergy: Introduce it in first two weeks of life.”

Interesting that the “accepted wisdom” seems to be wrong again. Feeding a bit of formula with cow’s milk in the first two weeks (with breast milk as “the nutritional staple”) can avoid later problems in most children, but introducing it for the first time at about three to five months, as we’ve been counseled for years, turns out to be the worst time to do it. –  L


Invitation to WPI Center Grand Opening, Saturday August 21

The University of Nevada, Reno, the University of Nevada School of Medicine, and the Whittemore Peterson Institute for Neuro-Immune Disease invite you to the grand opening of the Center for Molecular Medicine.

Saturday, August 21, 2010
10:00 a.m. to 12:00 p.m.
Center for Molecular Medicine
University of Nevada, Reno
Reno, Nevada

Map & Directions

Discover this one-of-a-kind facility and take a glimpse of the future of health. For more information about the Center for Molecular Medicine please visit or

No RSVP is required


Celiac Disease Vaccine Has Completed Phase I Trial

Re: “Toxic trio in celiac disease pinpointed after analysis of 2,700 gluten peptides – Vaccine trial underway”

Now that there’s a good chance a preventive vaccine and treatments for celiac disease will be available in the foreseeable future, genetic testing for at-risk people is even more important. If someone related to you by blood has been diagnosed with celiac disease, you should be tested because your odds of sharing the genes are high.

Right now, knowing your risk could ensure you cut off the disease’s damage quickly if you begin to notice symptoms. (In our celiac support group, one woman first developed symptoms & was diagnosed when she was 85 years old.)

But when there’s a vaccine… at-risk people could have the opportunity to prevent the disease and the physical damage ever developing, and might even be able to eat gluten-containing foods without fear. [For more info, see the University of Chicago Celiac Disease Center’s Q&A on Genetic Testing.] – R


Who Should NOT Take Shingles (Herpes Zoster) Vaccine

Some people should not get shingles vaccine or should wait. According to the CDC’s advisory page on “Who should NOT get vaccinated with these vaccines”:

A person should not get shingles vaccine who:

• Has ever had a life-threatening allergic reaction to gelatin, the antibiotic neomycin, or any other component of shingles vaccine. Tell your doctor if you have any severe allergies.

• Has a weakened immune system because of:
– HIV/AIDS or another disease that affects the immune system,
– Treatment with drugs that affect the immune system, such as steroids, or cancer treatment such as radiation or chemotherapy,
– A history of cancer affecting the bone marrow or lymphatic system, such as leukemia or lymphoma.


Pain Cream Delivers Herbal Anti-inflammatories Transdermally

Saw this link on Dr. Lapp’s Hunter Hopkins facebook page & thought it might be something to try for fibro pains It is a little article of comments by employees of the Pittsburgh Tribune-Review who tested a rub-on pain cream. I was interested so I looked up what’s in this stuff. Lots of anti-inflammatory extracts from plants (curcumin/turmeric, holy basil, ginger root, willow bark, and a few others). The newspaper testers said it doesn’t have that strong “I’m wearing pain cream” smell. I wonder if anyone here has tried it. – S


“Support Dr. Myhill” Team Launches Next Phase

Following news was posted July 7 in the Discussion section of the “Support Dr. Sarah Myhill” facebook site, which has 2,278 registered members and growing. – B

“The Support Dr Myhill team are now in the process of producing a document of Patient Experiences to be used as evidence. This document will contain both success stories of Dr. Myhill’s treatments, drawn from the many hundreds of letters sent to the GMC in Dr. Myhill’s defense, and also, more sadly, the post-IOP Hearing experiences of those of Dr. Myhill’s patients whose health has been, quite often, severely affected as a result of the restrictions imposed by the GMC.”

Note: See Dr. Myhill’s site for background on this grass-roots patient protest.


Researchers Paying for Infectious/Autoimmune Disease Blood

If you’ve been recently diagnosed with anything, you might want to take a look at this page – you might be able to donate some blood, make some money doing it, and help research. No experience with it, but hopefully it will help someone make some extra $$ towards paying their doctors or for their meds etc. – V

“If you have been recently diagnosed with an infectious or autoimmune disease, please call SeraCare today.

“Your plasma donation is urgently needed for research, and a payment of $200 or more per donation will be made immediately, to you or the charity of your choice. Multiple donations are possible.”


Agencies on Aging Help ALL AGES with SS Disability Applications & More

Before you do an SSI application, contact your local Agency on Aging. [Each state has a central department – see – that contracts with a network of Area Agencies on Aging.] They help ALL AGES who are disabled with completing applications for Social Security Disability (The Agency on Aging came to our local disabled support group and did an entire presentation, including telling us they help people fill out the applications for Social Security Disability, and it is a little known fact). It may be that an agency helping you complete the application may more completely focus on the answers that SSA wants. (It’s hard for us individuals to fill out those forms and they are so long). – T

Note: the Area Agencies on Aging administer programs that provide many different types of help and, in addition to older adults, also serve adults with disabilities, family caregivers, and residents in long-term care facilities.


ME/CFS History – Timeline and Bloodline?

Re: “A Commotion in the Blood – Timeline & Bloodline”

Thanks very much for your article linking to Mindy Kitei’s timeline on CFS Central of ME/CFS events leading up to the question of whether it can be/has been transmitted in blood. – D


TV Segment with Dr. who Worked on Montoya’s Stanford Valcyte Study

This is a nice CFS segment and interview which appeared July 21 on San Francisco Bay area TV. It features Dr. Andreas Kogelnik, MD, PhD, who worked with Jose Montoya on the Stanford Valcyte CFS study. Kogelnik is director of the Open Medicine Institute – a community based ‘translational research institute that conducts research on CFS/Neuroimmune Diseases, Genomics, Immunology, Rhematology, Infectious Disease, and Oncology, and applies new knowledge in clinical practice. – O


ME/CFS and Wonky Fingerprints

I have occasionally read that some CFS patients “lose” their fingerprints… I was sooo curious about my fingerprints. So I marched my sick ole self down to the local jail and got my fingerprints professionally done. And lo and behold they are all screwed up! The print tech said that my fingerprint ridges are very flattened, deteriorated. The patterns were very faint, almost unreadable. I am only 40. I asked her – “Well what are they supposed to look like?” And she was kind enough to quick do one of her own fingerprints to show me what normal looks like. Big difference between hers and mine. So now I know that if I try to commit some kind of crime I won’t even have to remember to wear gloves. – L


Home Vitamin D Test

I got worried about my vitamin D after reading an article on symptoms of deficiency that sounded like me. But I live way out in the “sticks.” So rather than spend a day to go see my doctor, I ordered an in-home vitamin D test. This one I ordered from the Vitamin D Council site. I got the kit, provided the sample, sent it back & got the results. It was easy, and my D was very low, about 14 ng/ml, so it was good I did it. (If you live in New York you can’t do this because the state doesn’t allow specimens through the mail.) – M


Routine Antibiotic After Tick Bite Would Avoid Many Cases of Lyme

Re: “Efficacy of antibiotic prophylaxis for the prevention of Lyme disease”

For anybody that gets bitten by a tick, especially in Lyme country, I suggest you mention this article to your doctor and ask for an antibiotic, because your risk of getting Lyme is 10 times more if you don’t. – H


Iced Tea & Kidney Stones

If you LIVE ON ice tea when it’s hot the way my family does, read this article [“Hidden Hazards of Iced Tea” by Loyola University Health System]. Tea has a lot of “oxalates” that form kidney stones (it’s true this is the most pain you can imagine!), and people tend to drink larger amounts of ice tea than they do hot tea. On the other hand this article says lemons & citrus “wards off kidney stones.” And high-calcium food “reduces the amount of oxalate the body absorbs.” – W

Note: This information has not been evaluated by the FDA. It is general and anecdotal and is not meant to prevent, diagnose, treat or cure any illness, condition or disease. It is very important that you make no change in your healthcare plan or health support regimen without researching and discussing it in collaboration with your professional healthcare team.

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One thought on “From Our Readers – Comments & Suggestions 07-28-10”

  1. Aberlaine says:

    I was fascinated by the idea that the fingerprints of people with ME/CFS deteriorate over time. So, I searched for proof. I could find no evidence of this.

    However, I did find several articles that indicated that people suffering from celiac disease have deteriorated fingerprints.

    If the person who made this statement, could post the website where he/she found this information, I’d appreciate it – because my fingerprints look pretty wonky themselves!

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