May 5 & 6 – CFS Advisory Committee Meeting in Washington, DC – Patients & Advocates Urged to Participate

The U.S. Department of Health & Human Services (HHS) has scheduled the next meeting of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) in Washington, DC – to be held Monday, May 5, 2008 and Tuesday, May 6, 2008.

  • The meeting hours are from 9 a.m. to approximately 5 p.m. on both days.
  • The meeting is open to the public and invites patient/advocate comments.
  • The address: Department of Health and Human Services; Room 800 Hubert H. Humphrey Building; 200 Independence Avenue, SW.; Washington, DC 20201.
  • Public attendance at the meeting is limited to space available. Attendees must provide a photo ID for entry into the building; and those who will need special assistance such as sign language interpretation or other reasonable accommodations should call (202) 401-7605.
  • The agenda for this meeting is being developed and when finalized will be posted on the CFSAC Website (

Information about the public comments, the CFSAC, and its charter, is as follows.

Patients and Advocates Are Urged to
Attend & Register to Offer Comments

The meeting is open to members of the public. ME/CFS patients and advocates who wish to offer brief comments during the public comment session must preregister by May 1, 2008 by calling (202) 401-7605, and provide at least one copy of any materials to be reproduced prior to close of business on May 1. Materials and any questions should be addressed to:

Dr. Anand K. Parekh, Executive Secretary, Chronic Fatigue Syndrome Advisory Committee; Department of Health and Human Services; 200 Independence Avenue, SW., Room 727H; Washington, DC 20201; (202) 401-7605.

Regarding the Content and Length of Public Comments

The meeting announcement states:

  • The Committee is very interested to hear about experiences that individuals with Chronic Fatigue Syndrome have had interfacing with the medical community.
  • In addition, the Committee welcomes specific comments on issues surrounding Chronic Fatigue Syndrome research, provider education, and quality of life.
  • Public comment will be limited to five minutes per speaker.

The CFSAC – Current Members and Intended Function

The CFSAC was established on September 5, 2002. For information on current members, go to the CFSAC website at The Committee was established to advise, consult with, and make recommendations to the Secretary of HHS, through the Assistant Secretary for Health, on a broad range of topics including:

  • The current state of knowledge and research about the epidemiology and risk factors relating to Chronic Fatigue Syndrome, and identifying potential opportunities in these areas;
  • Current and proposed diagnosis and treatment methods for Chronic Fatigue Syndrome; and
  • Development and implementation of programs to inform the public, health care professionals, and the biomedical, academic, and research communities about Chronic Fatigue Syndrome advances.

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