Before I was diagnosed with FMS/CFS they thought I may have Muscular Dystrophy. After one year of testing and seeing a specialist I was very frustrated and… asked "Why it has been so long with no answers to whether I have Muscular Dystrophy?" His response was "Well, It has been one year since I have been seeing you – I can rule out two of the types of Muscular Dystrophy because after this year you would be dead or clinging to life in a hospital bed. The other types I can't comment on right now."
“Is it going to hurt?” I asked the doctor who was going to remove fluid from my knee cap. “You have to break a few eggs to make an omelet,” he says, leaving the room to get the nine-inch needle.
The doctor says, "Well, you know, as we get older our bodies break down. There's nothing we can do about it. You just have to resign yourself." I say, "I'm 19."
[After an hour and a half answering questions in a two-hour evaluation for invalidity with CFS – the last half hour with head down on the doctor’s desk] I said, “Sorry, I do this or pass out.” I lay down on the floor and put my legs at 90 degrees on my chair. He couldn't see me, and stood up to look down at me with a surprised expression. I told him to go on and finish his questionnaire. His final question was "What is keeping you from going back to work tomorrow?"
I had a rare as-yet-unnamed visual condition that causes a "snow" like effect in my visual field like you'd see if you were watching an old TV set. One neuro-ophthalmogist told me "Well, I have no earthly idea what is wrong with you. Maybe you're actually the next generation of evolved human and you're picking up some kind of radio or telemetry signal through your brain. Maybe in a few generations everyone will have this ability."
Doc: "Have you ever considered you may have Fibromyalgia?"
Me: "Um, yes, I was diagnosed four years ago."
Doc: " Who have you been seeing for this?"
Me: "Umm, you, for the last three years."