August 19 – Rich Van Konynenburg (Richvank) passed the following information to various ME/CFS message boards and forums (many thanks, Rich):
I just received the following message from Dr. Joe Burrascano. I checked with him, and he responded that this information can be made public. I don't have any additional information about this, so won't be able to answer questions, but it sounds like a major development, and I think people here will want to know about it.
Hello all from Dr. B. [Dr. Burrascano is a leading authority on tick-borne diseases, particularly Lyme disease.]
I just returned from the first official scientific symposium of the Whittemore-Peterson Institute on the topic of XMRV. We formed a working group to be in constant touch and we plan to meet regularly because advances are coming so rapidly.
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Big news that everyone should know and adopt is that we have proposed a name change for the virus.
This virus is a human, not mouse virus, and it is the first and so far only gamma-retrovirus known to infect people. Also, it is clearly not an "endogenous" retrovirus (one that is present in all genomes due to ancient infection). Because of all of this, and because of the desire to begin on the right track:
• The new name of the virus is HGRV – Human Gamma Retro Virus.
• The illness caused by this infection is named HGRAD – Human Gamma Retrovirus Associated Disease.
We plan to announce this at the upcoming NIH retroviral conference this September.
Definitely stay tuned – the volume of new and important information about this virus and its disease associations is increasing rapidly and in my opinion should be a concern to every patient with chronic neuro-immune diseases, including those with chronic Lyme.
Joseph J. Burrascano Jr. M.D.
Water Mill, NY, USA